Von Hippel-Lindau Syndrome Resources
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
VHL Alliance is dedicated to research, education and support to improve diagnosis, treatment and quality of life for those affected by von-hippel lindau.