X-linked Lymphoproliferative Syndrome Resources
The A-T Society works to improve quality of life and care for people living with ataxia-telangiectasia while promoting research to lengthen lives and find a cure.
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders.
IDF is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases.
The Jeffrey Modell Foundation is a public charity devoted to early and precise diagnosis, meaningful treatments, and ultimately, cures for primary immunodeficiency (PI) diseases.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
The XLP Research Trust exists to promote and fund research into the cause, management, symptoms and cure for X-linked lymphoproliferative syndrome (XLP).