Care for the Caregiver
Published on in Beyond Blood
Published on in Beyond Blood
As the caregiver for a child with an ongoing medical diagnosis, you may be facing new or changing responsibilities. Many of these changes can be scary, and you may question if you can do a good job. Not only are you dealing with regular childhood issues, but you also need to deal with how your child’s condition affects your family and routines. Juggling the medical needs of this child with your needs and the needs of other family members can feel overwhelming.
A recent study in the Journal of Pediatric Psychology (2013) reports that among caregivers of children with ongoing medical needs, three themes emerge. They are stress related to:
You may have many feelings about all of this. Anger, fear, resentment, guilt, grief, loneliness or helplessness are common responses to the changes that you or your family face. These feelings do not mean that you don’t love your child; they are common, normal responses to your situation.
It is important to be aware of the signs of caregiver burnout. It may not be obvious to you, may develop over time, and may not be linked to a specific time or event that you can pinpoint.
To prevent burnout, there are important strategies to help you to cope:
Though you may be using healthy coping strategies, it is important to take note and respond to these warning signs of burnout. These may come to your attention through a friend, family member or health professional:
If you identify in yourself or are alerted by someone close to you that you are experiencing signs of caregiver burnout, it is important to seek assistance. Asking for help is a mature response to a situation that is testing your ability to cope. Reach out to:
The celebrated violinist Pablo Casals once said, “The capacity to care is the thing that gives life its deepest significance and meaning.” The suggestions provided here are offered to support to you, your child and your family so you can continue over the years to thrive despite the challenges and impact of your child’s ongoing medical diagnosis.
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