Pediatric Stroke Research Project: How You Can Help
Published on
Stroke NotesPublished on
Stroke NotesMany of the research projects conducted by members of CHOP’s Pediatric Stroke Program are possible thanks to the families who have agreed to participate. We need your help!
Rebecca Ichord, MD, and Lori Billinghurst, MD, are interested in developing a research project that helps to improve outcomes after pediatric stroke. They would like to submit a proposal to the Patient-Centered Outcomes Research Institute (PCORI) for project funding.
The PCORI actively engages “stakeholders”— that means you! — in research, from study inception (what to study) through to completion and dissemination of the results.
We are interested in hearing from families who are interested in helping us develop a PCORI project. At the start, this might include things like completing an online questionnaire and participating in a parent focus group to help us better understand the questions you have about your child’s stroke and her future.
If you’re interested in participating, please send an email to Laura Jastrzab at pediatricstroke@email.chop.edu with your name, your child’s name and your contact details. Alternately, Laura may be reached by telephone at 267-426-7332.
We thank you in advance, and would like to extend our appreciation to other families who have participated in the following research projects:
Categories: Stroke Notes Summer 2015, Pediatric Stroke