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Parental Perspectives on Diagnosis of Cerebral Palsy

Parents’ perspectives on the diagnosis of cerebral palsy can range from frustration over a delayed diagnosis, especially if they previously had expressed concerns to their provider, to relief to finally receive the diagnosis of a special need and get confirmation that they “are not crazy.” This case study illustrates how to approach these difficult conversations with humility and sensitivity.

Spotlight on: Youth Advisory Council
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Spotlight On: Youth Advisory Council

When leaders at The Children’s Hospital of Philadelphia wanted more insight into the patient experience and how it could be improved, they sought out experts: The kids themselves.

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