Family Justice Partnership
The Family Justice Partnership provides free legal services to patient families in select locations whose health and well-being may be negatively affected by a legal barrier.
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Tips for Reaching Out to Your Elected Officials
Legislative advocacy is speaking up for another or championing a cause in order to change public policy. Find tips for voicing your concerns to your legislators.
BAE Cafe: Breastfeeding Awareness & Empowerment
The Breastfeeding Awareness & Empowerment (BAE) Cafe is a group for moms who are breastfeeding and pregnant women who are planning to breastfeed.
RYR1 Foundation
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
Understanding Genomics and Genetic Testing
This educational module from Children's Hospital of Philadelphia (CHOP) is designed to help you understand the basics of genomics and how changes in our genetic makeup can lead to various medical conditions.
Normal Pituitary Gland Function in Children
The pituitary gland regulates such important functions as growth, sexual development, metabolism, and the body’s response to stress. Learn about the role of this “master gland."
Stay Connected with the Cardiac Center
Be among the first to know about our latest breakthroughs. Subscribe to Cardiac Connection, a special e-newsletter for families that includes: updates on our research and treatment advances, patient stories, profiles of our clinicians, and much more! Follow us on Facebook and Twitter.
Using Biofeedback Therapy for Bowel Movements
This video is for parents and caregivers who want to learn more about biofeedback therapy, a technique used to help children learn how their muscles can work together when having a bowel movement.
How Much Phe?
"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."
The Mid-Atlantic Connection for PKU and Allied Disorders
MACPAD is a network of individuals and families touched by phenylketonuria and allied disorders. Their website provides educational resources, newborn screening information, support groups, upcoming events, and more.