AMPS Awareness Association
Our goal is to raise awareness of Amplified Musculoskeletal Pain Syndrome, ensuring timely diagnoses, effective treatments, and a supportive community for children and teens affected by AMPS.
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Pain Actually Happens in Your Brain
We don’t mean it in the “it’s all in your head and you’re crazy” way, but in an actual, real, this-is-how-your-body-was-designed way. For you to experience pain as you know it, a signal from the body has to actually reach your brain. Pain is your body’s warning alarm system letting you know that something might be wrong, and that you should pay attention in case you need to do something to keep yourself safe or prevent some damage to your body.
Healthy Sleep for Kids and Teens with Chronic Pain
Did you know? Kids aged 6-12 need 9-12 hours of sleep a night. Teenagers aged 13-18 need 8 to 10 hours.
Pain and Function for Kids and Teens
How daily activity helps with your chronic pain
School Guidelines for Kids and Teens with Chronic Pain
Family education guide answering frequently asked questions regarding school guidelines for kids and teens with chronic pain.
Cognitive Behavioral Therapy (CBT) and Pain Management
A family education guide on cognitive behavioral therapy and pain management.
Travel Resources for HI Patients
Learn about medical travel assistance for your child and see what’s required.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
Orphan Disease Program
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.
RareShare
Create an account to join closed support groups specific to rare genetic conditions including undiagnosed.