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Canavan Foundation

The Canavan Foundation is a 501c3 not-for-profit organization dedicated to educating at-risk populations about Canavan disease and other genetic diseases and the reproductive options available to carrier couples. We encourage preconception genetic carrier screening whenever appropriate. In addition, the foundation supports research towards treatments and a cure for Canavan disease.

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Mission Massimo Foundation

The Mission Massimo Foundation aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood Leukodystrophies and to translate these findings into clinical treatments.

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When Your Teen Has an Eating Disorder: Practical Strategies to Help Your Teen Recover from Anorexia, Bulimia, and Binge Eating

If your teen has an eating disorder—such as anorexia, bulimia, or binge eating—you may feel helpless, worried, or uncertain about how you can best support them. That’s why you need real, proven-effective strategies you can use right away. Whether used in conjunction with treatment or on its own, this book offers an evidence-based approach you can use now to help your teen make healthy choices and stay well in body and mind.

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Anorexia and other Eating Disorders: How to help your child eat well and be well

The most effective treatment for eating disorders is family-based, where parents play an essential role. Yet most struggle to know what to do and how to do it. With a wealth of practical examples and tips that have helped many tens of thousands of relieved parents, Eva Musby guides you through each stage of your son or daughter's recovery. She provides solace and confidence, while addressing the real-life questions that parents struggle with.

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Brave Girl Eating

In BRAVE GIRL EATING Harriet Brown describes how her family, with the support of an open-minded pediatrician and a therapist, helped her daughter recover from anorexia using a family-based treatment developed at the Maudsley Hospital in London.

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Survive FBT

Parents have desperately asked for more information to help them understand anorexia’s grip on their child and to survive the intensity of the treatment. This book was written to give these parents the tools to help them “see it through” to the end.

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