School Guidelines for Kids and Teens with Chronic Pain
Family education guide answering frequently asked questions regarding school guidelines for kids and teens with chronic pain.
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Cognitive Behavioral Therapy (CBT) and Pain Management
A family education guide on cognitive behavioral therapy and pain management.
Travel Resources for HI Patients
Learn about medical travel assistance for your child and see what’s required.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
Orphan Disease Program
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.
RareShare
Create an account to join closed support groups specific to rare genetic conditions including undiagnosed.
Ryan’s Case for Smiles CopingSpace
This website provides resources for families that of children with any medical diagnosis, including sibling supports, caregiver supports, age appropriate books and resources. They also outline TV shows, educational resources for providers, educators, and mental health resources
Anxiety
Anxiety disorders are serious mental health problems that can emerge ‘out of the blue’ or develop gradually. Learn about the signs and symptoms of anxiety, how it's is diagnosed and treated at CHOP.
Major Depression in Children
Major depression is a persistently sad or irritable mood that affects a child's thinking and behavior at home, in school, and with peers.
Taking Charge of Your Healthcare: What to Know Before You Turn 18
We want our patients to learn how to manage their future care. Get our tips for the transition from CHOP care to adult care, even before you turn 18.