Cardiac Center Clinical Studies

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Aneurysms in ARPKD

The primary goal of this research study is to learn if patients with autosomal recessive polycystic kidney disease (ARPKD) are at risk for brain aneurysms or cardiovascular abnormalities. Participants in this study will involve patients that have a clinical diagnosis of ARPKD. The study will also involve a comparison group of healthy individuals that have no history of kidney or cardiac conditions.

iTONE Study

iTONE will study the impact of a 6-month home exercise program on physical activity levels, skeletal muscle mass and strength, functional health status, and quality of life in children and teenagers with pulmonary hypertension.  Participants will receive home exercise prescriptions from the CHOP exercise trainers, tailored to their interests and abilities.  Participants will wear a smartwatch that tracks activity and communicates with a digital health platform connected to the study team.