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Epilepsy Neurogenetics Initiative (ENGIN) Patients Stories Listing
Our ENGIN clinic has one of the largest epilepsy neurogenetics teams in the world. Our team of experts includes pediatric neurologists, genetic counselors, and physical and occupational therapists.
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Lexi’s Story: Specialized Clinical Care for Beta-Propeller Protein-Associated Neurodegeneration (BPAN)
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Cate’s Story: Attaining a Genetic Diagnosis With the Help of the Epilepsy Neurogenetics Initiative
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Jaxson’s Story: Using Telemedicine to Reach Children With Rare Genetic Epilepsies
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Lucy’s Story: Going All In to Cure a Rare Disease
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Lauren’s Story: Uncovering the Genes that Cause Epilepsy
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