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Neurofibromatosis Program

Meet your Neurofibromatosis Program team

Your child will be cared for by one of the most accomplished teams of NF experts in the world. The team includes multiple subspecialties such as genetics, pediatrics, neuro-oncology, neuro-ophthalmology, ophthalmology and orthopedics.

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Director, Neurofibromatosis Program

Michael J. Fisher, MD

Michael J. Fisher, MD

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Medical Director, Neurofibromatosis Pediatric Program

Rachel Hachen, MD, MPH

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Program Manager

Caitlyn McFadden, MBA

Caitlyn McFadden, MBA

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Attending Physicians

William Anninger, MD

William Anninger, MD

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Robert A. Avery, DO, MSCE

Robert A. Avery, DO, MSCE

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Jean B. Belasco, MD

Jean B. Belasco, MD

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Kristina A. Cole, MD, PhD

Kristina A. Cole, MD, PhD

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Brian J. Forbes, MD, PhD

Brian J. Forbes, MD, PhD

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Carlyn Glatts, MD

Carlyn Glatts, MD

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Chelsea Kotch, MD, MSCE

Chelsea Kotch, MD, MSCE

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Grant T. Liu, MD

Grant T. Liu, MD

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Jane E. Minturn, MD, PhD

Jane E. Minturn, MD, PhD

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Michael Napkori, DO, FAAP

Michael Napkori, DO, FAAP, FAACPDM

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Amish C. Shah, MD, PhD

Amish C. Shah, MD, PhD

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Elaine H. Zackai, MD

Elaine H. Zackai, MD

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Neuropsychologists

Kelly Janke, PhD, ABPP-CN

Kelly Janke, PhD, ABPP-CN

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Iris Paltin, PhD, ABPP-CN

Iris Paltin, PhD, ABPP-CN

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Sarah M. Powell, PhD, ABPP

Sarah M. Powell, PhD, ABPP

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Neurosurgery

Peter J. Madsen, MD, MBE

Peter J. Madsen, MD

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Advanced Practice Providers

Connie DiDomenico, MSN, RN, CRNP

Connie DiDomenico, MSN, RN, CRNP

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Casey Eck

Casey Eck, MSN, CRNP, CPNP-AC, CPHON

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Jennifer M. Fitzula, MSN, CRNP, CPNP-AC, CPHON

Jennifer M. Fitzula, MSN, CRNP, CPNP-AC, CPHON

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Cindy Schmus, MSN RN PPCNP-BC

Cindy Schmus, MSN, RN, PPCNP-BC, CRNP

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Social Work

Catherine Schmidt, MSW, LSW

Catherine Schmidt, MSW, LSW

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Nurse Navigators

Francesca Parvesse, BSN, RN

Francesca Parvesse, BSN, RN

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Andrea Rennie, BSN, RN

Andrea Rennie, BSN, RN

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Psychometrists

Danielle Lawler

Danielle Lawler, MEd

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Clinical Research Study Manager

Ratnakar Patti, PhD

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Clinical Research Study Lead

Maureen McCauley, BS

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Clinical Research Coordinators

Sophia Araneta

Sophia Araneta

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Symone M. Brown, MS, MPH, MBA

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Maddie Nguyen

Maddie Nguyen, MS

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Omololu Omoteso

Omololu Omoteso

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Kevin Pettijohn

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Hannah Sherman, RN, BSN

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Maggie Sugarman, RN, BSN

Maggie Sugarman, RN, BSN

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Administrators

Anna Laimo

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Access Coordinators

Samaria Bey, BSW

Samaria Bey, BSW

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Dario Henriquez, AD

Dario Henriquez, AD

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Program Coordinators

Aliya Burroughs

Aliya Burroughs, MBA

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Sara Murray, M.Ed

Sara Murray, MEd

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