Pulmonary Hypoplasia Program Patients Stories Listing

Here at the Pulmonary Hypoplasia Program, you have access to a team with a rare depth of knowledge, including specialists from neonatology, pulmonary medicine, cardiology, general surgery, nutrition, audiology, behavioral health, social services and more.

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Patient story

Hugh’s Story

Hugh was diagnosed with congenital diaphragmatic hernia (CDH) in utero. His parents traveled to the Center for Fetal Diagnosis and Treatment at Children’s Hospital of Philadelphia (CHOP), which has treated more CDH cases than any hospital in the world. Hugh is now a healthy 10-year-old who proudly claims Philly as his hometown, and the Eagles as his favorite team.

Patient story

AJ’s Story: Fetal Surgery for Congenital Diaphragmatic Hernia

Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.

Patient story

Congenital Diaphragmatic Hernia Treatment Before Birth: Hendrix’s Story

When their unborn baby was diagnosed with congenital diaphragmatic hernia (CDH), Alyssa and Louis turned to CHOP for treatment before and after birth.

Patient story

Success with Less-invasive Treatment for Pulmonary Hypoplasia: Lucy’s Story

Lucy was born with small lungs and critical breathing challenges. The care she received at CHOP prepared her to go home with minimal breathing support.

Patient story

Lily’s Story: Congenital Diaphragmatic Hernia Repair

After receiving a prenatal diagnosis of CDH, Laura and Nick turned to the expertise of CHOP’s fetal team.

Patient story

Oliver’s Story: Prenatal and Postnatal Care of CDH and Giant Omphalocele

After an unexpected prenatal diagnosis, Olly’s parents found comfort with the experienced team at CHOP’s Center for Fetal Diagnosis and Treatment.

Patient story

Giant Omphalocele: Emma’s Story

After a long journey to overcome giant omphalocele, a life-threatening birth defect, Emma is thriving.

Patient story

Fetal Surgery for Congenital Cystic Adenomatoid Malformation: Elijah’s Story

Elijah needed a lifesaving surgery while he was still in his mother’s womb. Today, he's an active 6-year-old who loves basketball and T-ball, goes swimming, rides his bike, and rock climbs.

Patient story

Congenital Diaphragmatic Hernia: Gage’s Story

Born with CDH, Gage made a full recovery after surgery at CHOP. To help others, his family is participating in research about long-term outcomes for CDH.

Patient story

Congenital Diaphragmatic Hernia (CDH): Carter’s Story

Even though home is near Washington, DC, Carter, 6, travels to Philadelphia for ongoing care for the congenital diaphragmatic hernia he was born with.