Pulmonary Hypoplasia Program Patient Stories
1 - 10 of 17
AJ’s Story: Fetal Surgery for Congenital Diaphragmatic Hernia
Fetal surgery for severe CDH gave AJ’s lungs a chance to grow before birth, improving his chances of a better outcome. Today, the 6-year-old is thriving.
Congenital Diaphragmatic Hernia Treatment Before Birth: Hendrix’s Story
When their unborn baby was diagnosed with congenital diaphragmatic hernia (CDH), Alyssa and Louis turned to CHOP for treatment before and after birth.
Success with Less-invasive Treatment for Pulmonary Hypoplasia: Lucy’s Story
Lucy was born with small lungs and critical breathing challenges. The care she received at CHOP prepared her to go home with minimal breathing support.
Lily’s Story: Congenital Diaphragmatic Hernia Repair
After receiving a prenatal diagnosis of CDH, Laura and Nick turned to the expertise of CHOP’s fetal team.
Oliver’s Story: Prenatal and Postnatal Care of CDH and Giant Omphalocele
After an unexpected prenatal diagnosis, Olly’s parents found comfort with the experienced team at CHOP’s Center for Fetal Diagnosis and Treatment.
Giant Omphalocele: Emma’s Story
After a long journey to overcome giant omphalocele, a life-threatening birth defect, Emma is thriving.
Fetal Surgery for Congenital Cystic Adenomatoid Malformation: Elijah’s Story
Elijah needed a lifesaving surgery while he was still in his mother’s womb. Today, he's an active 6-year-old who loves basketball and T-ball, goes swimming, rides his bike, and rock climbs.
Congenital Diaphragmatic Hernia: Gage’s Story
Born with CDH, Gage made a full recovery after surgery at CHOP. To help others, his family is participating in research about long-term outcomes for CDH.
Congenital Diaphragmatic Hernia (CDH): Carter’s Story
Even though home is near Washington, DC, Carter, 6, travels to Philadelphia for ongoing care for the congenital diaphragmatic hernia he was born with.
Giant Omphalocele: Jameson's Story
When Jameson was diagnosed with giant omphalocele before birth, the positive attitude of the team at CHOP made his parents feel much better about the journey ahead.