Lori J. Howell, DNP, MS, RN
Lori J. Howell is the Executive Director of the Center for Fetal Diagnosis and Treatment at Children's Hospital of Philadelphia.
Phone: 800-468-8376
Background
Lori J. Howell, DNP, MS, RN, is the Executive Director for the Center for Fetal Diagnosis and Treatment. Less formally, she is known as the “glue” that connects the many working parts of this complex center. She is a familiar and much-loved face and voice to thousands of families served by the program.
For more than 30 years, Howell has been committed to ensuring the highest standard of care for families facing birth defects. She, along with many members of the Center team, has been a force in advancing the field of fetal treatment from its inception. At the University of California, San Francisco Medical Center, Howell served as the very first fetal surgery nurse coordinator for that institution’s nascent fetal program. While at UCSF, as the Clinical Nurse Specialist for Pediatric Surgery, she also developed the pediatric pain management, tracheostomy and clean intermittent catheterization programs and worked to champion education for patient families.
Howell came to CHOP in 1995, believing the Hospital was an ideal setting in which to establish a comprehensive fetal therapy program. She was integral in launching the Center for Fetal Diagnosis and Treatment and in assembling the multidisciplinary team that brings an exceptional depth of experience in every known aspect of fetal diagnosis and therapy. More recently, she spearheaded the creation of the unique Garbose Family Special Delivery Unit.
At CHOP, Howell has also created and led a new training program for Surgical Advanced Practice Nurses; developed a comprehensive, family-focused patient evaluation process; and collaborated in producing a series of educational videos for families confronted with life-threatening fetal diagnoses.
“It’s so important to know as much as possible about the family and the disease their child or fetus has. After that, it is about educating them to make the family the expert in their child’s care,” she says. “As a nurse, I feel privileged to be there for a family during an intensely difficult time — to be able to offer help, knowledge, support and often, hope.”
Howell is a recipient of the Founders Award for Excellence in Pediatric Surgical Nursing and the author of several articles on the establishment of fetal centers. She is a mentor to nurses and a source of knowledge and comfort to patients. She is also the holder of the Lynne L. Garbose Endowed Chair in Fetal Family Care at CHOP.
Howell received her degree in Nursing at the Intercollegiate Center for Nursing Education at Washington State University, and received her Masters of Science in Parent/Child Nursing at the University of California, San Francisco. She went on to earn her Doctor of Nursing Practice at the Villanova University College of Nursing.
In spring 2015, Howell appeared in a three-part documentary series airing on PBS called TWICE BORN: Stories from the Special Delivery Unit. The Emmy® Award-winning documentary offered a look inside the Center for Fetal Diagnosis and Treatment at Children’s Hospital of Philadelphia, and its unique Garbose Family Special Delivery Unit.
To contact the Center for Fetal Diagnosis and Treatment, call 1-800-468-8376 (1-800-IN-UTERO).
Education and Training
Additional Training
Clinical Nurse Specialist Pediatric Surgery and Coordinator for Fetal Treatment Center at the University of California - San Francisco
Undergraduate Degree
BSN - Washington State University, Intercollegiate Center for Nursing Education
Graduate Degree
Doctor of Nursing Practice (DNP) - Villanova University College of Nursing, Villanova, PA
MS in Parent/Child Nursing - University of California, San Francisco, CA
Titles and Academic Titles
Executive Director, Center for Fetal Diagnosis and Treatment
Program Director, Surgical Advanced Practice Nurses
Lynne L. Garbose Endowed Chair in Fetal Family Care
Clinical Associate, Family and Community Health Division, School of Nursing, University of Pennsylvania
Departments and Services
Publications
Papers
2020
Houtrow AJ, Thom EA, Fletcher JM, Burrows PK, Adzick NS, Thomas NH, Brock III JW, Cooper T, Lee H, Bilaniuk L, Glenn OA, Pruthi S, MacPherson C, Farmer DL, Johnson MP, Howell LJ, Gupta N, Walker WO. “Prenatal Repair of Myelomeningocele and School-Age Functional Outcomes,” Pediatrics, online January 24, 2020.
2019
Oliver ER, DeBari SE, Horii SC, Pogoriler JE, Victoria T, Khalek N, Howell LJ, Adzick NS, Coleman BG: Congenital Lobar Overinflation: A Rare, Enigmatic Lung Lesion on Prenatal Sonography and Magnetic Resonance Imaging. J Ultrasound Med 38(5): 1229-1239, May 2019.
Congenital diaphragmatic hernia sacs: prenatal imaging and associated postnatal outcomes. Oliver ER, DeBari SE, Adams SE, Didier RA, Horii SC, Victoria T, Hedrick HL, Adzick NS, Howell LJ, Moldenhauer JS, Coleman BG. Pediatr Radiol. 2019 Jan 11. doi: 10.1007/s00247-018-04334-9. [Epub ahead of print]
2018
Farmer DL, Thom EA, Brock JW 3rd, Burrows PK, Johnson MP, Howell LJ, Farrell JA, Gupta N, Adzick NS; Management of Myelomeningocele Study Investigators. The Management of Myelomeningocele Study: full cohort 30-month pediatric outcomes. Am J Obstet Gynecol. 2018 Feb;218(2):256.e1-256.e13. Epub 2017 Dec 12. PubMed PMID: 29246577.
Antiel RM, Janvier A, Feudtner C, Blaine K, Fry J, Howell LJ, Houtrow AJ. The experience of parents with children with myelomeningocele who underwent prenatal surgery. J Pediatr Rehabil Med. 2018 Nov 18;. PMID: 30507587
Didier RA, DeBari SE, Oliver ER, Gebb JS, Howell LJ, Hedrick HL, Adzick NS, Coleman BG. Secondary Imaging Findings Aid in Prenatal Diagnosis and Characterization of Congenital Diaphragmatic Hernia: Role of an Abnormal Orientation of Vascular Structures and Gallbladder Position. J Ultrasound Med. 2018 Sep 23;. [Epub ahead of print] PMID: 30244484
Oliver ER, DeBari SE, Horii SC, Pogoriler JE, Victoria T, Khalek N, Howell LJ, Adzick NS, Coleman BG. Congenital Lobar Overinflation: A Rare Enigmatic Lung Lesion on Prenatal Ultrasound and Magnetic Resonance Imaging.J Ultrasound Med. 2018 Sep 12. doi: 10.1002/jum.14801. [Epub ahead of print] Read the abstract.
Oliver ER, DeBari SE, Giannone MM, Pogoriler JE, Johnson AM, Horii SC, Gebb JS, Howell LJ, Adzick NS, Coleman BG: Going with the Flow: An Aid in Differentiating Bronchopulmonary Sequestrations and Hybrid Lesions. J Ultrasound Med 2018; 37:371-383. February 2018.
2017
Oliver ER, Coleman BG, DeBari SE, Victoria T, Looney DM, Horii SC, Moldenhauer JS, Langer JE, Howell LJ, Pawel BR, Adzick NS. Fetal Lymphatic Malformations: More Variable Than We Think? J Ultrasound Med. 2017 Jan 27. Doi:10.7863/ultra.16.04071. [Epub ahead of print]
2016
Johnson MP, Bennett KA, Rand L, Burrows PK, Thom EA, Howell LJ, Farrell JA, Dabrowiak ME, Brock JW 3rd, Farmer DL, Adzick NS, MOMS Investigators. The Management of Myelomeningocele Study: obstetrical outcomes and risk factors for obstetrical complications following prenatal surgery. Am J Obstet Gynecol. 2016 Dec;215(6):778.e1-778.e9.
Cole JC, Moldenhauer JS, Berger K, Cary MS, Smith H, Martino V, Rendon N, Howell LJ. Identifying expectant parents at risk for psychological distress in response to a confirmed fetal abnormality. Archives of Women’s Mental Health (2016) June:19(3): 443-453.
Antiel RM, Adzick NS, Thom EA, Burrows PK, Farmer DL, Brock JW, Howell LJ, Farrell JA, Houtrow AJ. Impact on Family and Parental Stress of Prenatal versus Postnatal Repair of Myelomeningocele. Am J Obstet Gynecol. 2016 Oct;215(4):522.e1-6. doi: 10.1016/j.ajog.2016.05.045. Epub 2016 Jun 2.
Unolt M, DiCairano L, Schlechtweg K, Barry J, Howell L, Kasperski S, Nance M, Adzick NS, Zackai EH, McDonald-McGinn DM. Congenital diaphragmatic hernia in 22q11.2 deletion syndrome. Am J Med Genet A. 2016 Sep 28. doi: 10.1002/ajmg.a.37980.
Antiel RM, Adzick NS, Thom EA, Burrows PK, Farmer DL, Brock JW 3rd, Howell LJ, Farrell JA, Houtrow AJ; Management of Myelomeningocele Study Investigators. Impact on family and parental stress of prenatal vs postnatal repair of myelomeningocele. Am J Obstet Gynecol. 2016 Jun 2. pii: S0002-9378(16)30264-2. doi: 10.1016/j.ajog.2016.05.045.
2015
Brock JW, Carr MC, Adzick, NS, Burrows PK, Thomas JC, Thom EA, Howell LJ. Bladder Function After Fetal Surgery for Myelomeningocele. Pediatrics (2015) Oct;136(4):e906-13.
Moldenhauer JS, Soni S, Rintoul NE, Spinner SS, Khalek N, Martinez-Poyer J, Flake AW, Hedrick HL, Peranteau WH, Rendon N, Koh J, Howell LJ, Heuer GG, Sutton LN, Johnson MP, Adzick NS. Fetal Myelomeningocele repair: the post-MOMS experience at the Children’s Hospital of Philadelphia. Fetal Diagnosis and Therapy 2015; 37(3):325-40.
Ferraro NM, Reamer CB, Reynolds TA, Howell LJ, Moldenhauer JS, Day TE. Capacity Planning for Maternal-Fetal Medicine Using Discrete Even Simulation. American Journal of Perinatology (2015) Jul;32 (8): 761-70.
Peranteau WH, Adzick NS, Boelig MM, Flake AW, Hedrick HL, Howell LJ, Moldenhauer JS, Khalek N, Martinez-Poyer J, Johnson MP. Thoracoamniotic shunts for the management of fetal lung lesions and pleural effusions: A single institution review and predictors of survival in 75 cases. Journal of Pediatric Surgery 50(2015) 301-305.
Cole JC, Moldenhauer JS, Berger K, Cary MS, Smith H, Martino V, Rendon N, Howell LJ. Identifying expectant parents at risk for psychological distress in response to a confirmed fetal abnormality. Arch Womens Ment Health. 2015 Sep 21. [Epub ahead of print]
2014
Vrecenak JD, Howell LJ, Khalek N, Moldenhauer JS, Johnson MP, Coleman BG, Victoria T, Hedrick HL, Peranteau WH, Flake AW, Adzick NS. Outcomes of prenatally diagnosed lung lesions in multi gestational pregnancies. Fetal Diagnosis and Therapy 2014; 36(4): 312-9
Peranteau WH, Moldenhauer JS, Khalek N, Martinez-Poyer JL, Howell LJ, Johnson MP, Flake AW, Adzick NS, Hedrick HL. Open Fetal Surgery for Central Bronchial Atresia. Fetal Diagnosis and Therapy 2014; 35:141-147.
2013
Kaplan MC, Coleman BG, Shaylor SD, Howell LJ, Oliver ER, Horii SC, Adzick NS. Sonographic features of rare posterior fetal neck masses of vascular origin. J Ultrasound Medicine 2013 May;32(5):873-80.
Laje P, Howell LJ, Johnson MP, Hedrick HL, Flake AW, Adzick NS. Perinatal management of congenital oropharyngeal tumors: the ex utero intrapartum treatment (EXIT) approach. J Pediatric Surg 2013 Oct;48(10): 2005-10
Oliver ER, Coleman BG, Goff DA, Horii SC, Howell LJ, Rychik J, Bebbington MW, Johnson MP. Twin reversed arterial perfusion sequence: a new method of parabiotic twin mass estimation correlated with pump twin compromise. Journal of Ultrasound Medicine 2013 Dec;32(12):2115-23
Howell LJ. The Garbose Family Special Delivery Unit: A New Paradigm for Maternal, Fetal and Neonatal Care. Seminars in Pediatric Surgery. 22(2013) 3-9.
2012
Farrell J, Howell LJ. An Overview of Surgical Techniques, Research Trials and Future Directions of Fetal Therapy. JOGNN Volume 41, Issue 3 419-425. May/June 2012
Spinner SS, Miesnik SR, Koh JG, Howell LJ. Maternal, Fetal and Neonatal Care in open Fetal Surgery for Myelomeningocele. JOGNN Volume 41, Issue 3 447-454. May/June 2012
Laje P, Johnson MP, Howell LJ, Bebbington BW, Hedrick HL, Flake AW, Adzick NS. Ex utero Intrapartum Treatment in the Management of Giant Cervical Teratomas. J Pediatr Surg 47(6) 1208. June 2012
2011
Adzick NS, Thom EA, Spong CY, Brock JS, Burrows PK, Johnson MP, Howell LJ, Farrell JA, Dabrowiak ME, Sutton LN, Gupta N, Tulipan NB, D'Alton ME, Farmer DL, for the MOMS Investigators. A Randomized Trial of Prenatal versus Postnatal Repair of Myelomeningocele. New England Journal of Medicine. 2011 Feb on line version. March 17, 2011. 364:993-1004
2009
Nallasamy S, Davidson SL, Howell LJ, Hedrick HL, Flake AW, Crombleholme TM, Adzick NS, Young TL. The Effects of Fetal Surgery on Retinopathy of Prematurity Development. Ophthalmology and Eye Diseases. October 2009: 1 13-19.
2008
Peranteau WH, Merchant AM, Hedrick HL, Liechty KW, Howell LJ, Flake AW, Wilson RD, Johnson MP, Bebbington MW, Adzick NS. Prenatal Course and Postnatal Management of Peripheral Bronchial Atresia: Association with Congenital Cystic Adenomatoid Malformation of the Lung. Fetal Diagnosis and Therapy 2008; 24:190-196.
Tsai AY, Liechty KW, Keswani S, Hedrick HL, Bebbington MW, Wilson RD, Johnson MP, Howell LJ, Flake AW, Adzick NS. Outcomes Following Postnatal Resection of Prenatally Diagnosed, Asymptomatic Cystic Lung Lesions. J Pediatr Surg 43(3):513-517, Mar. 2008
2007
Howell LJ, Miesnik SR, Young KB. "Fetal Surgery" in Browne N, Flanigan L, McComiskey C, Pieper P. (eds): Nursing care of the general pediatric surgical patient, Jones & Bartlett, Sudbury, Massachusetts, pp 153-166, 2007.
HL Hedrick, E Danzer, A Merchant, MW Bebbington, H Ahao, AW Flake, MP Johnson, KW Liechty, LJ, Howell, RD Wilson, NS Adzick. Liver Position and lung-to-head ratio for prediction of extracorporeal membrane oxygenation and survival in isolated left congenital diaphragmatic hernia. Am J of Obstet Gynecol 2007; 197:422.e1-422.e4.
Howell LJ. Guest Editor. J. Perinatal and Neonatal Nursing. Surgical Neonate.2:1, 2007.
Miesnik SR, Wright JM, Young KB, Howell LJ. CCAM Case Study. Poster presented at March of Dimes March, 2007.
Howell LJ, Widmer TM: "Fetal Surgery" in Longbucco DB and Sanders RV (eds) Neonatal Surgical Care. 2007.
2006
Howell LJ, Johnson, MP, Adzick, NS. Creating a State of the Art Center for Fetal Diagnosis and Treatment: Importance of a Multidisciplinary Approach. Progress in Pediatric Cardiology. 2006; 121-127
Danzer E, Hubbard AM, Hedrick HL, Johnson MP, Wilson RD, Howell LJ, Flake AW, Adzick NS. Diagnosis and characterization of fetal sacrococcygeal teratoma with prenatal MRI. AJR Am J Roentgenol. 2006 Oct;187(4):W350-6.
Peranteau WH, Ganguly A, Steinmuller L, Thornton P, Johnson MP, Howell LJ, Stanley CA, Adzick NS. Prenatal diagnosis and postnatal management of diffuse congenital hyperinsulinism: a case report. Fetal Diagn Ther. 2006;21(6):515-8. Epub 2006 Sep 12. PubMed PMID: 16969006.
Liechty KW, Hedrick HL, Hubbard AM, Johnson MP, Wilson RD, Ruchelli ED, Howell LJ, Crombleholme TM, Flake AW, Adzick NS. Severe pulmonary hypoplasia associated with giant cervical teratomas. J Pediatr Surg. 2006 Jan;41(1):230-3. PubMed PMID: 16410139.
2005
Hedrick HL, Flake AW, Crombleholme TM, Howell LJ, Johnson MP, Wilson RD, Adzick NS: The e utero Intrapartum therapy procedure for high-risk fetal lung lesions. J Pediatr Surg 40:1038-1044, 2005.
Merchant AM, Hedrick HL, Crombleholme TM, Johnson MP, Wilson RD, Howell LJ, Adzick NS, Flake AW: Management of fetal mediastinal teratoma: A report of two cases. J Pediatr Surg 40:228- 231, 2005.
Keswani SG, Crombleholme TM, Rychik J, Mackenzie TC, Johnson MP, Tian ZY, Wilson RD, Flake AW. Hedrick HL, Howell LJ, Adzick NS: The impact of hemodynamic monitoring on the conduct of open fetal surgery. Fetal Diagnosis and Therapy 20:316-320, 2005.
Keswani SG, Crombleholme TM, Johnson MP, Flake AW, Hedrick HL, Howell LJ, Wilson RD, Pawel BR, Davis GH, Adzick NS: The Prenatal Diagnosis and management of Mainstem Bronchial Atresia. Fetal Diagnosis and Therapy 20:74-78, 2005.
2004
Wilson RD, Baxter JK, Johnson MP, King M, Kasperski S, Crombleholme TM, Flake AW, Hedrick HL, Howell LJ, Adzick NS: Thoracoamniotic shunts: Fetal treatment of congenital cystic adenomatoid malformation or pleural effusions. Fetal Diagnosis and Therapy 19:413-420, 2004.
Hedrick HL, Flake AW, Crombleholme TM, Howell LJ, Johnson MP, Wilson RD, Adzick NS: Sacrococcygeal teratoma: Prenatal assessment, fetal intervention, and outcome. J Pediatr Surg 39:430 – 438, 2004.
Rychik J, Tian Z, Cohen MS, Ewing SG, Cohen D, Howell LJ, Wilson RD, Johnson MP, Hedrick HL, Flake AW, Crombleholme TM, Adzick NS. Acute cardiovascular effects of fetal surgery in the human. Circulation. 2004 Sep 21;110(12):1549-56. Epub 2004 Sep 7. Review. PubMed PMID: 15353490.
2003
Johnson MP, Adzick NS, Rintoul N, Crombleholme TM, Flake AW, Howell LJ, Hedrick HL, Wilson RD, Sutton LN: Fetal myelomeningocele repair: Short-term clinical outcomes. Am J OB Gyn 189:482-487, 2003.
Lim F-Y, Crombleholme TM, Hedrick HL, Flake AW, Johnson MP, Howell LJ, Adzick NS. Congenital high airway obstruction syndrome: Natural history and management. J Pediatr Surg 38: 940-945, 2003.
Keswani SG, Johnson MP, Horii S, Howell LJ, Hedrick HL, Flake AW, Wilson RD, Adzick NS, Crombleholme TM: In utero limb savage: Fetoscopic release of amniotic bands for threatened limb amputation. J Pediatr Surg 38:848-851, 2003.
Wilson RD, Johnson MP, Crombleholme TM, Flake AW, Hedrick HL, King M, Howell LJ, Adzick NS: Chorioamniotic membrane separation following open fetal surgery: Pregnancy outcome. Fetal Diagnosis and Therapy 2003 Sep-Oct; 18(5):314-20.
Howell LJ, Adzick NS. Establishing a Fetal Therapy Center: Lessons Learned. Seminars in Pediatric Surgery, 2003.
Hedrick HL, Flake AW, Crombleholme TM, Howell LJ, Johnson MP, Wilson RD, Adzick NS. History of fetal diagnosis and therapy: Children's Hospital of Philadelphia experience. Fetal Diagn Ther. 2003 Mar-Apr;18(2):65-82. Review. PubMed PMID: 12576740.
2002
Coleman BG, Adzick NS, Crombleholme TM, Johnson MP, Howell LJ et al. Fetal Therapy State of the Art. J Ultrasound Med. 21:1257-1288, 2002.
Cohen MS, Rychik J, Bush DM, Tian Z, Howell LJ, Adzick NS, Flake AW, Johnson MP, Spray TL, Crombleholme TM. Influence of congenital heart disease on survival in children with congenital diaphragmatic hernia. J Pediatr. Jul;141(1):25-30. 2002
Liechty KW, Crombleholme TM, Coleman BG, Howell LJ, Flake AW, Adzick NS: Elevated cystic adenomatoid malformation volume ratio (CVR) is associated with development of hydrops. J Pediatr Surg, 2002.
Bergman K, Kenner C, Inturrisi M, Howell LJ, and Farrel J: M: "Fetal Therapy" in Kenner C, Wright Lott J, and Flandermeyer A (eds): Comprehensive Neonatal Nursing Care: A Physiologic Perspective, third edition, WB Saunders. 2002
Howell LJ, Burns KM, Lengetti E, Kerr JC: Management of fetal airway obstruction: An innovative approach. MCN. 27:238-244, 2002.
MacKenzie TC, Crombleholme TM, Johnson MP, Schnaufer, L, Flake AW, Hedrick, HL, Howell LJ, Adzick NS: The Natural History of Prenatally Diagnosed Conjoined Twins. J Pediatr Surg. 2002 Mar;37(3):303-9.
Bouchard S, Johnson MP, Flake AW, Howell LJ, Myers LB, Adzick NS, Crombleholme TM. The EXIT procedure: experience and outcome in 31 cases. J Pediatr Surg. 2002 Mar;37(3):418-26. PubMed PMID: 11877660.
2001
MacKenzie TC, Howell LJ, Flake AW, Adzick NS: Management of prenatally diagnosed choledochal cysts. J Pediatr Surg. 36:1241-1243, 2001.
2000
Walsh DS, Hubbard AM, Olutoye OO, Howell LJ, Crombleholme TM, Flake AW, Johnson, MP, Adzick NS: Assessment of fetal lung volumes and liver herniation with magnetic resonance imaging in congenital diaphragmatic hernia. Am J Obstet Gynecol. 183:1067-1069, 2000.
Flake AW, Crombleholme TM, Johnson MP, Howell LJ, Adzick NS: Treatment of severe congenital diaphragmatic hernia by fetal tracheal occlusion: Clinical experience with fifteen cases. Am J Obstet Gynecol.183:1059-1066, 2000.
Mahle WT, Rychik J, Tian ZY, Cohen MS, Howell LJ, Crombleholme TM, Flake AW, Adzick, NS: Echocardiographic evaluation of the fetus with congenital cystic adenomatoid malformation. Ultrasound Obstet Gynecol.16:200-624, 2000.
Howell LJ, Von Nessen, S, Burns, KM: "Fetal Surgery" in Wise BV, McKenna C, Garvin G, Harmon BJ (eds): Nursing care of the general pediatric surgical patient, ASPEN, Gaithersburg, MD pp 95-109, 2000.
1999
Howell, LJ, Adzick, NS: Essentials of a Fetal Therapy Center. Seminars in Perinatology. 23:535-540, 1999.
Howell LJ: Advances in prenatal diagnosis and Treatment. Advance for Nurses. 1:22-23, 1999.
Hubbard AM, Crombleholme TM, Adzick NS, Coleman BG, Meyers JS, Flake AW. Howell LJ: Prenatal MRI evaluation of congenital diaphragmatic hernia. American Journal of Perinatology. 16:407-413, 1999.
Hubbard AM, Adzick NS, Crombleholme TM, Coleman BG, Howell LJ, Haselgrove JC, Mahboubi S: Congenital chest lesions: Diagnosis and characterization with prenatal MR imaging. Radiology. 212:43-48, 1999.
Howell LJ, Dunphy PM: Fetal Surgery: Exploring the Challenges in Nursing Care. JOGNN. 28:427-432,1999.
1998
Adzick NS, Harrison MR, Crombleholme TM, Flake AW, Howell LJ: Fetal lung lesions: Management and outcome. Am J Obstet Gynecol 179:884-889, 1998.
Bergman K, Kenner C, Inturrisi M, Howell LJ, and Farrel J: M: Fetal Therapy in Kenner C, Wright Lott J, and Flandermeyer A (eds): Comprehensive Neonatal Nursing Care: A Physiologic Perspective, second edition, WB Saunders, Philadelphia, PA pp 767-780, 1998.
Flake AW, Howell LJ: "Fetal Surgery" in Stringer MD, Oldham KT, De Mouriquand P, & Howard ER (eds): Pediatric Surgery & Urology: Long Term Outcomes. WB Saunders, Philadelphia, PA pp 797-805, 1998.
1997
Harrison MR, Adzick NS, Bullard KM, Farrell JA, Howell LJ, Rosen MA, Sola A., Goldberg JD, and Filly RA: In utero repair of congenital diaphragmatic hernia in utero: A prospective trial. J Pediatr Surg 32:1637-1642, 1997.
Crombleholme TM, Hubbard AM, Howell LJ, Jackson M, Morgan MA, Adzick NS: EXIT procedure (Ex utero Intrapartum Treatment) for giant fetal neck masses. Am J Obstet Gynecol 176:584, 1997.
Cass DL, Crombleholme TM, Howell LJ, Stafford PW, Ruchelli ED, and Adzick SA: Cystic lung lesions with systemic arterial blood supply: A hybrid of congenital cystic adenomatoid malformation and bronchopulmonary sequestration. J Pediatr Surg 32:986-990, 1997.
1996
Dunn PA and Howell LJ: Fetal Treatment, in Dunn PA (ed): Manual of Obstetric Nursing, Little, Brown, and Co., pp 82-91, 1996.
1995
Stringer MD, Goldstein RB, Filly RA, Howell LJ, Sola A, Adzick NS, Harrison MR: Fetal diaphragmatic hernia without visceral herniation. J Pediatr Surg 30:1264-1266, 1995.
1994
Howell LJ: The Unborn Surgical Patient: A Nursing Frontier. Nurs Clin N Amer 20:681-693, 1994.
Hedrick HL, Crombleholme TM, Flake AW, Nance ML, von Allmen D, Howell LJ, Johnson MP, Wilson RD, Adzick NS: Right congenital diaphragmatic hernia: Prenatal assessment and outcome. J Pediatr Surg 39:319 -323, 1994.
Harrison MR, Adzick NS, Estes JM, Howell LJ: A prospective study of the outcome for fetuses with diaphragmatic hernia. JAMA 271:382-384, 1994.
1993
Harrison MR, Adzick NS, Flake AW, Jennings RW, Estes JM, MacGillivray TE, Chueh JT, Golbus MS, Filly RA, Goldstein RB, Howell LJ: Correction of congenital diaphragmatic hernia in utero: VI. Hard- earned lessons. J Pediatr Surg 28:1411-1418, 1993.
Adzick NS, Harrison MR, Flake AW, Howell LJ, Golbus MS, Filly RA: Fetal surgery for cystic adenomatoid malformation of the lung. J Pediatr Surg 28:806-812, 1993.
Howell LJ, Adzick NS, Harrison MR: The Fetal Treatment Center. Seminars in Pediatric Surgery 2: 143- 146, 1993.
1992
Duncan BW, Howell LJ, de Lorimier AA, Adzick NS, Harrison MR: Tracheostomy in children with emphasis on home care. J Pediatric Surg 27: 432-435, 1992.
1990
deLorimier AA, Harrison MR, Hardy K, Howell LJ, Adzick NS: Tracheobronchial obstruction in infants and children: Experience with 45 cases. Ann Surg 212:277-290, 1990.
1989
Howell LJ: The Pediatric Surgical Clinical Nurse Specialist, in Sparacino P and Cooper D (eds): Clinical Nurse Specialist Impact and Evaluation, CV Mosby, pp163-180, 1989.
1988
Howell LJ: Parent instruction for home care management of tracheostomies, ileostomies, colostomies, gastrostomies in Ballard RH (ed): Care of the ICN Graduate, WB Saunders, Philadelphia, PA, pp 306- 316, 1988.
1986
Hedenkamp EA and Howell LJ: Care of the Pediatric Cardiac Surgical Patient, in Weeks L (ed): Advanced Cardiovascular Nursing, Blackwell Scientific Publications, pp 689-704, 1986.
Hedenkamp EA and Howell LJ: Assessment of the Acutely Ill Child, in Weeks L (ed): Advanced Cardiovascular Nursing, Blackwell Scientific Publications, pp 461-480, 1986.
1985
Howell LJ: Postoperative Management of the Child with Myringotomy, in Mott, Fazekas & James (eds): Nursing Care of Children and Families, Addison Wesley, Palo Alto, CA, 1985.
1982
Howell LJ: Transport of the Pediatric Near Drowning Patient, in Dunn N (ed): Neonatal-Pediatric Training Manual for Transport Nurses, UCSF. 1982.
Posters and Presentations
Invited Lectures
2016
“The Fetal Therapy Center” WOFAPS Congress, Washington, DC, October 8, 2016 .
“Redefining Care for the Mother and Baby with a Birth Defect” Pediatric Nursing Conference, Philadelphia PA, June 2, 2016.
“Parent Perceptions of Multimedia Education in NICU for Surgical Disease”, American Pediatric Surgical Nurses Association 25th Annual Scientific Conference, San Diego CA, May 15, 2016.
“Parental Prenatal Spina Bifida Video Education” poster presentation: 13th National Advanced Practice Neonatal Nurses Conference, San Diego CA, April 22, 2016.
“Parental Prenatal Spina Bifida Video Education” poster presentation: Annual Research Symposium Villanova University, Villanova PA, March 22, 2016.
“Establishing delivery services and perinatal care for birth defects at a Children's Hospital: The CHOP SDU” Update on Pediatric and Congenital Cardiovascular Disease, Orlando FL, February 28, 2016.
2015
“Gestation to Graduation: The Journey of the First Fetal Surgery Coordinator”, North American Fetal Therapy Network meeting, Chicago IL.
Awards and Honors
2014-2015, Ashley Rose Foundation Scholar
2011, Gold e-Healthcare Leadership Award, Best Health Care Content
2005, Platinum e-Healthcare Leadership Award, Best Health Care Content
2001, Founders' Award for Excellence in Pediatric Surgical Nursing – American Association of Pediatric Surgical Nurses
1999, General Surgery Division Brochure Award
1994, 1998, Special Performance Award for Exceptional Service, UCSF Management and Professional Staff
1989, Commendation Award for humanizing care to children and families, Northern California Association for the Care of Children's Health
1986, Featured in UCSF Magazine regarding Clinical Nurse Specialists
1980, Who’s Who Among Students in American Colleges and Universities
1980-present, Sigma Theta Tau, Nursing Honorary, Alpha Eta Chapter, University of California, San Francisco, CA
Editorial and Academic Positions
Editorial Positions
2008-present, Editorial Board, Journal of Perinatal and Neonatal Nursing
Academic and Institutional Committees
2011-present, Virtua Collaboration, Chair
2010-present, Neonatal Executive Committee
2008-present, Special Delivery Unit, Executive Committee, Chair
2004-present, Center for Fetal Diagnosis and Treatment Outreach Committee, Chair
1996-present, Chair, Center for Fetal Diagnosis and Treatment Annual Reunion
Leadership and Memberships
Memberships in Professional Organizations
2000-present, Association of Women's Health, Obstetrical and Neonatal Nursing
1999-present, National Association of Neonatal Nurses
1991-present, American Pediatric Surgical Nurses Association