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NTSAD is one of the oldest patient advocacy groups in the country, focused on funding research, providing support services to families and individuals worldwide, and raising awareness to prevent disease.
Resource Connects is a free website you can use to find community services and programs to support you, your child and family.
ULF is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals.
The Yaya Foundation focuses on finding a cure for 4H leukodystrophy by supporting research, raising awareness, improving education and connecting families.
"Written by the world’s foremost mitochondrial researchers, the book comprehensively presents the state-of-the-art in mitochondrial medicine, making it of interest to a wide variety of specialists, including neurologists, geneticists, internists and biologists."
The Mitochondrial Medicine team at CHOP provides this global resource to facilitate genomic and phenotype knowledge and data sharing and analysis across the global mitochondrial disease community.
13thirty is an internationally known and respected leader in the field of adolescent and young adult (AYA) cancer because of our strong passion, clear vision, and steadfast commitment to a singular focus — teens and young adults with cancer.
Acne Express is a virtual consult service that uses secure photograph submissions to assess your child’s acne. This service is available to patients 8 to 17 years old in New Jersey and Pennsylvania who have a MyCHOP account. Within 5 business days, a CHOP Dermatology physician assistant will review your case and included photos, make treatment recommendations, and prescribed medications if needed.
Check out our video library of desensitization techniques for Amplified Musculoskeletal Pain Syndrome.
Children’s Hospital of Philadelphia (CHOP) is leading an initiative to establish a multi-institutional program to advance research and treatment across the leukodystrophies.