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This international patient- and caregiver-run organization has a website with educational information about symptoms and treatment. Other resources include search tools to find providers and peer support groups, as well as research updates, an events calendar and a webinar library.
An educational site for children and caregivers who are living with non-epileptic events (PNEE, pseudoseizure and others). The explanatory content is extensive, as are the downloadable symptom management tools.
A UK-based, patient-led charity focused on education and peer support. FND Action has educational materials including an FND toolkit. Other peer support groups based in the UK include FND Dimensions.
This Australia-based educational organization has printable Fact Sheets on its website that focus on education for families, the role of PT/OT in treating FND, and the role of psychology in understanding the mind-body connection.
This self-guided resource helps children 9-19 understand their FND symptoms and learn to repair the mind-body connection, using mind-body techniques developed by occupational, physical and mental health therapists. By Katie Carey and Meagan Watson.
The goal of this tip sheet from the Division of Rheumatology at Children’s Hospital of Philadelphia (CHOP) is to help patients and families get a clear understanding of the specialty medication process, the tools you need to order specialty medication refills and who to call if you have a concern.
The Center for Health Equity (CHE) at Children’s Hospital of Philadelphia (CHOP) seeks to discover, implement and disseminate evidence-based practices and policies so everychild in Philadelphia has equitable care and that every child in Philadelphia achieves their best health.
Know when and why a visit to your primary care office can be billed as both a well visit and a sick visit.
If you’re new to seizures and epilepsy, this toolkit provides information, resources, factsheets, and more.
"As needed" rescue medicines should be used in response to clusters of seizures or longer-than-usual seizures. For more information, visit the Epilepsy Foundation today.