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Stop Childhood Pain

A nonprofit founded by a retired CHOP pediatrician to educate children, families and healthcare providers about Amplified Musculoskeletal Pain Syndrome (AMPS) and related disorders. The site provides a list of dedicated treatment programs in the U.S., as well as videos that focus on diagnosis, treatment and patient stories.

Health resource

The Comfort Ability

This one-day, in-person workshop (offered at CHOP and elsewhere) is intended for adolescents ages 10-17 and their caregivers. The workshop teaches pain management strategies and coping skills that are rooted in cognitive behavioral therapy (CBT).

Health resource

The Meg Foundation

This foundation educates kids and their families about pain and pain management. The content is organized by age group and type of pain, in multiple languages, and includes extensive video content.

Health resource

The United Healthcare Children’s Foundation (UHCCF)

A 501(c)(3) charitable organization that provides medical grants to help children gain access to health-related services not covered, or not fully covered, by their parents’ commercial health insurance plan. Families can receive up to $5,000 annually per child ($10,000 lifetime maximum per child). **See your Social Worker for assistance with application**

Health resource

Sloth Goes To The Hospital

This book was created to offer a tangible resource to patients and families that introduces the creative arts therapies at CHOP.

Health resource

Lung Transplant: A Guide for Patients and Families

Download this guide to learn about important topics including the transplant evaluation process, waiting for a transplant, transplant surgery, post-transplant care, and life after transplant.

Health resource

Leukodystrophy Symposium Webinar Videos

These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.

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