The Use of Human Milk During Parent-Newborn Separation
This evidence-based Clinical Practice Guideline was developed for the Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN) as an informational resource for nursing practice.
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Mito Hope for Families Fund
This fund is designed to help mito patient and families obtaining or seeking care at CHOP. These funds can help supplement travel related costs, uncovered medical expenses, or other financial hardships given the underlying diagnosis. Our families can apply once a year to this fund for support. To find out more information or if your needs qualify you can reach out to our social worker Addie Fishstein fishsteina@chop.edu.
Postpartum Depression in Dads and Partners Podcast
In this episode of the Primary Care Perspectives podcast series, David Levine, MD, pediatrician and board member, Postpartum Support International, discusses perinatal mood and anxiety disorders (PMADs) in dads, partners, and adoptive parents.
Global Genes
Global Genes is committed to providing information, resources and connections to all communities affected by rare disease.
Operation Respect
Includes information on the anti-bullying initiative, “Don’t Laugh at Me,” as well as professional development workshops and school assembly programs.
PHACE Syndrome Community
Support research and advocacy, networking among families, provide factual information and resources.
Liam’s Land for Lymphatic Malformation Research
Liam’s Land’s focus is research, a registry, funding genetic testing and clinical trials.
Lipedema Foundation
Lipedema Foundation focuses on research for cause & effective treatment of lipedema.
Proteus Syndrome Foundation
A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
PTEN Hamartoma Tumor Syndrome Foundation
Education, financial assistance, research and awareness.