Global Genes
Global Genes is committed to providing information, resources and connections to all communities affected by rare disease.
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Operation Respect
Includes information on the anti-bullying initiative, “Don’t Laugh at Me,” as well as professional development workshops and school assembly programs.
PHACE Syndrome Community
Support research and advocacy, networking among families, provide factual information and resources.
Liam’s Land for Lymphatic Malformation Research
Liam’s Land’s focus is research, a registry, funding genetic testing and clinical trials.
Lipedema Foundation
Lipedema Foundation focuses on research for cause & effective treatment of lipedema.
Proteus Syndrome Foundation
A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
PTEN Hamartoma Tumor Syndrome Foundation
Education, financial assistance, research and awareness.
Section 504
Section 504 of the Rehabilitation Act of 1973 ensures that individuals with disabilities are given protection from discrimination. Often at school, this means that a child is allowed reasonable accommodations as determined by a 504 Committee.
Acupuncture in Pediatrics: A Review
More and more pediatric healthcare systems are incorporating acupuncture for pain management and other purposes.
Freeing Your Child from Anxiety: Powerful, Practical Solutions to Overcome Your Child's Fears, Worries, and Phobias by Tamar E. Chansky
In Freeing Your Child From Anxiety, a childhood anxiety disorder specialist examines all manifestations of childhood fears, including social anxiety, Tourette’s Syndrome, hair-pulling, and Obsessive Compulsive Disorder, and guides you through a proven program to help your child back to emotional safety.