Coping with a Dual Diagnosis
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Parents are usually blindsided when they find out that their child has congenital hyperinsulinism (HI), a rare genetic disorder that depresses blood sugar to dangerously low levels.
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Parents are usually blindsided when they find out that their child has congenital hyperinsulinism (HI), a rare genetic disorder that depresses blood sugar to dangerously low levels.
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A pilot study at CHOP is the first to demonstrate the effectiveness of the bihormonal bionic pancreas in hyperinsulinism patients.
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Last fall, Leela Morrow, PsyD, joined the Adrenal and Puberty Center at Children’s Hospital of Philadelphia, adding another service to the comprehensive program.
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Sometimes rare and super rare genetic conditions occur within the same child. That’s the case for Turner syndrome, which has an incidence rate of about 1 in 2,500 female births, and congenital hyperinsulinism, which happens about once in 50,000 births.
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When families learn that their child has congenital hyperinsulinism (HI), it’s not uncommon for parents to be overwhelmed by feelings of anxiety, isolation or helplessness.
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Last fall, Leela Morrow, PsyD, joined the team at the Congenital Hyperinsulinism Center at Children’s Hospital of Philadelphia, adding another service to the comprehensive program.
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The Congenital Hyperinsulinism Center at CHOP has been with your family every step of the way as you’ve treated and managed your child’s HI.
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When a family has a child with congenital hyperinsulinism, a question often arises: Will any future child also have HI?
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In a special segment broadcast in Panama in September, Diva D. De León-Crutchlow, MD, MSCE, recalled her path from her home county to her role as Chief of the Division of Endocrinology and Diabetes and Director of the Congenital Hyperinsulinism Center at Children's Hospital of Philadelphia (CHOP).
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CHOP’s Congenital Hyperinsulinism Center, which treats more children with HI than any center in the world, has added a dedicated genetic counselor to its multidisciplinary team.