CHOP Volunteers Make Camp Special Published on May 20, 2019 in Community Benefit Report CHOP volunteers make camp a reality for many kids with special medical needs. They not only keep them healthy, but they also take part of the activities and enjoy seeing kids being kids.
Gene-based Clotting Factor Prevents Bleeding in Animals with Hemophilia Published on Apr 15, 2019 in CHOP News A laboratory study may set the stage for a new preventive treatment for hemophilia patients who now develop antibodies to the standard treatment and then require a bypass therapy.
CHOP Investigator and Experimental One-dose Gene Therapy for Hemophilia B Featured in The New York Times Published on Aug 13, 2018 in CHOP News CHOP breakthrough helps scientists edge closer to defeating a longtime enemy of human health: hemophilia, the inability to form blood clots.
One-dose Gene Therapy Produces Clotting Factor, Safely Stops Bleeding in Hemophilia B Patients Published on Dec 07, 2017 in CHOP News A team of gene therapy researchers has reported on a highly active gene variant that achieved sustained factor levels in 10 adults, with no adverse effects.
3 CHOP Scientists Win Bayer Grants for Hemophilia Research Published on Jul 27, 2017 in CHOP News Three CHOP researchers recently won grants for their work on hemophilia from the Bayer Hemophilia Awards Program.
After One Dose of Gene Therapy Hemophilia B Patients Maintain Near-normal Levels of Clotting Factor Published on Dec 05, 2016 in CHOP News, International Update In a clinical trial led by a CHOP researcher, adult patients with hemophilia B were able to pursue daily activities without disabling bleeds.
Tell Me More about Von Willebrand Disease Published on Mar 03, 2014 in Beyond Blood Von Willebrand disease (VWD) is a bleeding disorder caused by having too little von Willebrand factor (VWF) protein or VWF that doesn’t work well.
Learning More about Platelet Disorders Published on Mar 03, 2014 in Beyond Blood Platelet disorders are an underrecognized cause of bleeding in patients with inherited causes of bleeding. These disorders have only recently become the focus of research efforts.
The Affordable Care Act and You Published on Mar 03, 2014 in Beyond Blood In response to problems in the U.S. healthcare system, the federal government passed a healthcare reform law called the Patient Protection and Affordable Care Act.
Care for the Caregiver Published on Mar 03, 2014 in Beyond Blood Be aware of the signs of caregiver burnout. It may not be obvious to you, may develop over time, and may not be linked to a specific time or event that you can pinpoint.