The Mid-Atlantic Region III Executive Committee (REC) is a group of providers and consumers that help guide the region in developing policies, initiating projects, creating materials for families and staff at hemophilia treatment centers (HTCs), as well as mentoring and monitoring the regional HTCs.
Membership in the REC represents the multidisciplinary care teams at the HTCs in the region and includes physicians, nurses, social workers, a physical therapist, three consumers and the Regional Director and Regional Coordinator. The REC meets twice a year in person and by conference call when indicated. The REC includes four key sub-committees.
This committee was formed in 2008 to respond to growing concerns about the lack of physicians entering the bleeding disorders field. The Scholars Program, the core activity of this group, offers scholarships for fellows and residents at HTCs to attend the Mid-Atlantic Region III Annual Meeting through an application process. The goal of the program is to recruit physicians in training and provide mentoring and networking opportunities to help spur interest in careers in hemostasis and thrombosis. Of the scholars accepted into the program, 5 percent are now working as physicians at HTCs in Mid-Atlantic Region III.
- Cliff Takemoto, MD
This is a long-standing multidisciplinary committee of the REC which plans educational programs for patients, families and providers. Past programs include a retreat for HIV-positive men, a conference for women with bleeding disorders, and a series of programs for parents of young children with hemophilia, which was most recently offered in September 2013. This committee also assists in planning regular educational programs for HTC staff in the region.
- Chair: Susan Cutter, LSW, MPA
This newly formed committee will assist the Core Center and the REC to meet regional goals to improve genetic education and services to patients and families. The committee will implement a new Mid-Atlantic Region III tool to track identification and education for female relatives of known patients with hemophilia, and help develop or adapt educational materials to overcome myths about the goal of carrier testing.
Standards of Care
This committee consists of physicians and nurses who are working to develop standards of care for patients with hemophilia. The committee is focusing on standards for common surgical procedures.
- Chair: Leslie Raffini, MD