Topolewski Pediatric Heart Valve Center Patient Stories
31 - 40 of 54
Heterotaxy Syndrome: Ethan’s Story
After learning that their unborn baby had heterotaxy syndrome and CHD, Alison and Philip turned to The Children’s Hospital of Philadelphia for hope.
Ebstein's Anomaly: Samaria's Story
After her toddler daughter Samaria had her third open heart surgery at CHOP to treat a single ventricle heart defect, Bonnie Martin knew she wanted to give something back to Children's Hospital of Philadelphia.
Coronary Artery Anomaly: Anthony's Story
Anthony's family turned to the Coronary Anomaly Management Program at CHOP, where a team is leading the search for answers about a little-understood heart defect called anomalous aortic origin of a coronary artery and other coronary artery anomalies.
Heterotaxy Syndrome: Laila's Story
Laila Kramer was 8 years old when her family learned she was born with heterotaxy syndrome, a rare birth defect where many of her internal organs are reversed from their normal positions. When she contracted a serious liver infection, she got help from CHOP experts.
Tetralogy of Fallot and Craniosynostosis: William's Story
William was born with tetralogy of Fallot, a heart condition that requires open heart surgery shortly after birth, and had surgery at CHOP.
Aortic and Pulmonary Stenosis: Matthew's Story
Matthew was diagnosed with aortic and pulmonary stenosis when he was 3 months old and underwent heart bypass surgery at CHOP's Cardiac Center.
Aortic Stenosis: Sarah's Story
Born with a heart defect called aortic stenosis, Sarah had two open heart surgeries when she was young. Now 16, she’s an honor roll student who loves art and design.
Atrial Septal Defect: Morgan's Story
Morgan was born with an ASD — sometimes called a "hole-in-the-heart" — and underwent a less invasive treatment at CHOP's Cardiac Center.
Chromosome 22q11.2 Deletion and Tetralogy of Fallot: Jack's Story
Born with a heart defect called tetralogy of Fallot, Jack was just 9 days old when his family learned he also had chromosome 22q11.2 deletion, a rare chromosomal difference.
Coronary Artery Anomaly: Quinn's Story
Quinn was diagnosed with a type of coronary artery anomaly called anomalous left coronary artery from the pulmonary artery (ALCAPA) and treated by the Cardiac team at CHOP, giving him a better chance at survival.