Our patients' stories

CAR T-Cell Therapy for Relapsed Leukemia: Austin’s Story
Austin spent most of his life fighting leukemia and the disease seemed to be winning — until a pioneering treatment at CHOP changed everything.

Individualized Medical Genetics: Connor’s Story
Genetic testing at Children’s Hospital of Philadelphia found a mutation in Connor’s STAT3 gene, which led to a tailored treatment plan.

Individualized Medical Genetics: Camryn’s Story
Genetics experts at Children’s Hospital of Philadelphia have helped Cortney and Ryan identify their daughter’s rare genetic mutation, leading to improved care.

Pulmonary Hypertension: Sara’s Story
Sara, 17, has her pulmonary hypertension and arrhythmia under control with help from the Pulmonary Hypertension Program.

Proton Therapy for Ewing Sarcoma: Carly’s Story
Diagnosed with Ewing sarcoma at 14, Carly has endured months of intensive treatment, but her positivity has persisted through it all.

Resistance to Eating New Foods: Shane and Nicholas’ Story
Twins, Shane and Nicholas, used to resist eating new foods. Now 3, they’re eating a variety of foods thanks to the Pediatric Feeding and Swallowing Center.

Pulmonary Hypertension: Emma’s Story
Emma, 9, has the energy to swim, dance and participate in the activities she loves thanks to the Pulmonary Hypertension Program at Children's Hospital of Philadelphia.

Selective Intrauterine Growth Restriction: Hattie and Nora’s Story
Twins Hattie and Nora were diagnosed with selective intrauterine growth restriction (sIUGR) before they were born, and monitored at Children’s Hospital of Philadelphia.

Chewing and Swallowing Problems: Noah’s Story
Noah, 4, used to have serious problems with chewing and swallowing solid food. Now he’s eating a balanced diet and is on track to be feeding himself.

Crohn’s Disease and Turner Syndrome: Laney’s Story
Laney has been living with both Turner syndrome and Crohn’s disease since she was a toddler. Thanks to Children’s Hospital, she is a thriving 11-year-old.

Fear of Eating Solid Foods: Gracie’s Story
The Martha Escoll Lubeck Feeding and Swallowing Center at Children’s Hospital of Philadelphia has helped Gracie overcome her fear of eating solid foods.
Pulmonary Hypertension: Emma’s Story
Emma has her complex heart problems, including pulmonary hypertension, under control thanks to the Cardiac Center at Children’s Hospital of Philadelphia.
Leukodystrophy: Chloe’s Story
After years of searching, Chloe’s family found support at Children’s Hospital of Philadelphia, where doctors identified the cause of her rare form of leukodystrophy.
Chylothorax: Tayvin’s Story
An innovative interventional procedure sealed the leaks in Tayvin’s lymphatic system. Weeks later, he was back to his favorite outdoor activities.
Hypertrophic Cardiomyopathy: Jake and Tyler’s Story
A cardiac program enabled brothers to learn they were at risk of a genetic heart condition. Recommended lifestyle changes could save their lives.
Heterotaxy Syndrome and Lymphatic Intervention: Carl’s Story
Carl, 4, is energetic again after treatment from the Cardiac Center at Children’s Hospital of Philadelphia to address his lymphatic complications.
Donor Story: Patrice and Irv Rubin
Patrice and Irv Rubin are pet owners who supporters of animal charities and CHOP. When it came time to put their affairs in order, they decided to split their estate between Children's Hospital of Philadelphia’s Gerald B. Schrieber Pet Therapy Program and the Bucks County SPCA.
Donor Story: Esha Bhatia
A fulfilling career at Children's Hospital of Philadelphia and a dedication to CHOP's mission led Esha Bhatia to make the Hospital part of her legacy as the beneficiary of her IRA.
Donor Story: John DeMaio, MD
As a resident physician at CHOP, Dr. John DeMaio spent the quiet periods at night playing with children who couldn't sleep. Now, years later, his estate planning will help the Child Life, Education and Creative Arts Therapy Department continue to help children play, cope and heal.
Postaxial polydactyly (extra pinky finger): Kaylee’s story
Kathryn and Brian learned at their 20 week ultrasound that their baby daughter had 10 perfect fingers — plus one more.