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Patient Stories

Our patients' stories

Patient story

Mitochondrial Disease: Nora’s Story

After severe mitochondrial disease claimed their son, a New York family relied on medical advances — and CHOP — to have a healthy daughter.

Patient story

Coming Back From Scoliosis: Annie’s Story

Teen’s pursuit of Paralympic gold spans the globe, from China to Idaho, and eventually to Philadelphia for corrective spine surgery to keep her track and field dreams alive.

Patient story

A Place of Hope: Juli’s Story

After 21 years at CHOP, Juli’s son, Brandon, will soon transition to adult care at ACHC. Hear about their journey and the hope Juli’s found at CHOP.

Patient story

Chronic Lung Disease: Leila’s Story

Born at 26 weeks, Leila’s lungs failed to develop. Specialty care during her CHOP stay and after helped her breathe on her own and her family cope.

Patient story

VACTERL Association: Olivia’s Story

Diagnosed with VACTERL Association, Olivia found improved care and treatment at CHOP’s Suzi and Scott Lustgarten Center for GI Motility.

Patient story

Pancreatic Acinar Cell Carcinoma: Maddie’s Story

When she was 12, Maddie was very active — in particular, she practiced gymnastics several hours a day. But stomach pains and weight loss signaled the start of a challenging medical journey for her and her family. 

Patient story

Sepsis Treatment and Follow-up Care: Sophia’s Story

What started as a bout of the flu for Sophia led to sepsis and significant medical complications that risked her life. She was transferred to CHOP where a multidisciplinary team of experts coordinated her complex care.  

Patient story

Interstitial Lung Disease: Jacob’s Story

CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.

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