Our patients' stories

Surgery for Acetabular Dysplasia and Femoral Head Cyst: Lauren’s Story
When Lauren, 38, was diagnosed with acetabular dysplasia, her doctors in North Carolina referred her to a world-renowned hip expert at Children’s Hospital of Philadelphia.

Food Allergies and Oral Immunotherapy: Madelyn’s Story
Eggs are back on the menu for 3-year-old Madelyn – thanks to oral immunotherapy at Children’s Hospital of Philadelphia.

Mitochondrial Disease: Nora’s Story
After severe mitochondrial disease claimed their son, a New York family relied on medical advances — and CHOP — to have a healthy daughter.

Acetabular retroversion: Hannah’s story
After receiving care at CHOP for acetabular retroversion, a painful hip condition, 15-year-old Hannah is thriving.

Legg-Calve-Perthes Disease: Max’s Story
After treatment for Legg-Calve-Perthes disease at CHOP, 7-year-old Max aims to help others with the condition.

Coming Back From Scoliosis: Annie’s Story
Teen’s pursuit of Paralympic gold spans the globe, from China to Idaho, and eventually to Philadelphia for corrective spine surgery to keep her track and field dreams alive.

Strength in Service: Nicole’s Story
An active philanthropist and longtime advocate for CHD, Nicole reflects on her journey navigating a child’s CHD.

Remembering My Heart Warrior: Beth’s Story
A Cardiac Family Advisory Council member shares her reflections on loving, and losing, a child with CHD.

A Place of Hope: Juli’s Story
After 21 years at CHOP, Juli’s son, Brandon, will soon transition to adult care at ACHC. Hear about their journey and the hope Juli’s found at CHOP.

From Surviving to Thriving: Elise’s Story
A heart mom reflects on how she navigates her son’s CHD with the help of the cardiac community.

Idiopathic Scoliosis and Posterior Spine Fusion: Lily’s story
Alabama girl comes to CHOP for spine surgery that straightens her spine and allows her to continue competitive dance.

Neuropathic Intestinal Dysmotility: Liyana’s Story
Liyana spent her first year in and out of hospitals as doctors tried to identify and treat her GI motility issue. Her family found answers, hope and healing at CHOP.

Chronic Lung Disease: Leila’s Story
Born at 26 weeks, Leila’s lungs failed to develop. Specialty care during her CHOP stay and after helped her breathe on her own and her family cope.

Listen: Intensive Program Helps Teens Who Stutter
At intensive CHOP program, teens who stutter learned tips from successful adults on how to manage the condition.

Skeletal Dysplasia, Thoracic Insufficiency and Pulmonary Hypoplasia: Klaire’s Story
Skeletal dysplasia and thoracic insufficiency syndrome led Klaire to have severely underdeveloped lungs. Expert treatment at CHOP has helped her thrive.

VACTERL Association: Olivia’s Story
Diagnosed with VACTERL Association, Olivia found improved care and treatment at CHOP’s Suzi and Scott Lustgarten Center for GI Motility.

Holden and Elliott’s Story: MECP2 Duplication Syndrome
Holden and his brother, Elliott, share more than a love for cars and trucks. They also both have the same rare genetic neurologic disorder, known as MECP2 duplication syndrome.

Pancreatic Acinar Cell Carcinoma: Maddie’s Story
When she was 12, Maddie was very active — in particular, she practiced gymnastics several hours a day. But stomach pains and weight loss signaled the start of a challenging medical journey for her and her family.

Sepsis Treatment and Follow-up Care: Sophia’s Story
What started as a bout of the flu for Sophia led to sepsis and significant medical complications that risked her life. She was transferred to CHOP where a multidisciplinary team of experts coordinated her complex care.

Interstitial Lung Disease: Jacob’s Story
CHOP’s diagnosis and treatment of a rare lung disease solved a medical mystery for Jacob. Shared care with his Virginia pulmonologist is keeping him healthy.