Division of Nephrology Patients Stories Listing

Here at the Division of Nephrology, we are known for our ability to diagnose, treat and care for children with all forms of kidney disease. We offer superb clinical care and a compassionate, family-centered approach.

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Dialysis unit (main hospital)

215-590-4600

Patient story

Isaiah’s Story: Management of Congenital Nephrotic Syndrome

Isaiah was born with congenital nephrotic syndrome, the same genetic mutation that caused his older brother to die in infancy. Isaiah’s improved experience and outcome showcases how multiple departments at CHOP work together to ensure the best patient and family care.

Patient story

Alexander’s Story: Advancing Research and Care for Autosomal Dominant Polycystic Kidney Disease

When Carolyn was 28 weeks pregnant with her third child and her doctor in New York discovered that her baby carried the gene for autosomal dominant polycystic kidney disease (ADPKD), she became dedicated to changing the historical lack of pediatric research on the rare disease.

Patient story

Congenital Nephrotic Syndrome and Kidney Transplant: Molly’s Story

After Molly qualified for a kidney transplant, a new organ from a living donor was identified thanks to CHOP’s involvement with the National Kidney Registry.

Patient story

New Onset Nephrotic Syndrome: Nolan’s Story

3 year old Nolan’s leg pain and swelling of his eyes and stomach led to a diagnosis of nephrotic syndrome, now managed by immunosuppression.

Patient story

A Game-changer for Kidney Stones: Chloe’s Story

Innovative care for Chloe’s kidney stones is closer than ever at CHOP’s new hospital in King of Prussia.

Patient story

IgA Nephropathy: Todd's Story

After being diagnosed with a rare kidney disease, Todd received care at Children’s Hospital of Philadelphia’s Specialty Care and Surgery Center in Voorhees.

Patient story

Medical Treatment of Lupus: Isabella’s Story

After receiving medical treatment for lupus at Children’s Hospital of Philadelphia, Isabella is back to enjoying arts and crafts.

Patient story

Medical Management of Nephrotic Syndrome: Harper's Story

Harper was diagnosed with nephrotic syndrome. After treatment at Children’s Hospital of Philadelphia, he is now in remission for his longest stretch yet.

Patient story

Nephrotic Syndrome: Nick’s Story

Nick, 12, is treated for nephrotic syndrome at the Division of Nephrology at Children’s Hospital of Philadelphia. He takes ownership of his health.

Patient story

Medical Management of Chronic Kidney Disease: Alixandria's Story

Alixandria’s abnormal levels of hemoglobin and iron were a mystery until a kidney biopsy at Children’s Hospital of Philadelphia revealed chronic kidney disease.