Division of Nephrology Patient Stories

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Isaiah’s Story: Management of Congenital Nephrotic Syndrome

Isaiah was born with congenital nephrotic syndrome, the same genetic mutation that caused his older brother to die in infancy. Isaiah’s improved experience and outcome showcases how multiple departments at CHOP work together to ensure the best patient and family care. 

IgA Nephropathy: Todd's Story


After being diagnosed with a rare kidney disease, Todd received care at Children’s Hospital of Philadelphia’s Specialty Care and Surgery Center in Voorhees.

Nephrotic Syndrome: Emein's Story

Emein’s sickle cell disease has caused various complications, including nephrotic syndrome. Specialists work together to keep his quality of life high.

Nephrotic Syndrome: Nick’s Story

Nick, 12, is treated for nephrotic syndrome at the Division of Nephrology at Children’s Hospital of Philadelphia. He takes ownership of his health.