Pulmonary Hypertension Program Patient Stories
1 - 10 of 10
Maddie’s Story: Tracheostomy Surgery for Chronic Lung Disease

Thanks to care from CHOP’s Newborn and Infant Chronic Lung Disease (NeoCLD) Program and a new, catheter-based surgery to close her congenital heart defect, Maddie is home and makes developmental gains every day.
Severe Chronic Lung Disease with Associated Pulmonary Hypertension: Taylor’s Story
Born 13 weeks premature, Taylor is now a happy toddler, thanks to expert care and innovative treatment for severe chronic lung disease at CHOP.
Pulmonary Hypertension and Transposition of the Great Arteries: Cole’s Story

Cole, 12, is able to treat his pulmonary hypertension with oral medications thanks to a clinical trial at Children’s Hospital of Philadelphia.
Congenital Diaphragmatic Hernia and Pulmonary Hypertension: Chad’s Story

Chad, 11, is smiling again after multiple surgeries and ongoing treatment for CDH and pulmonary hypertension at Children’s Hospital of Philadelphia.
Pulmonary Hypertension: Stella’s Story

A new regimen of oral medications allows Stella, 10, to treat her pulmonary hypertension and live an active life.
Pulmonary Hypertension: Lily’s Story
Lily, 8, has her complicated heart problems including pulmonary hypertension under control thanks to Children’s Hospital of Philadelphia.
Pulmonary Hypertension: Olivia’s Story

Olivia has been treated for pulmonary hypertension since she was a baby. Now 9, she’s a happy, caring child who loves books and music.
Pulmonary Hypertension: Sara’s Story

Sara, 17, has her pulmonary hypertension and arrhythmia under control with help from the Pulmonary Hypertension Program.
Pulmonary Hypertension: Emma’s Story

Emma, 9, has the energy to swim, dance and participate in the activities she loves thanks to the Pulmonary Hypertension Program at Children's Hospital of Philadelphia.
Pulmonary Hypertension: Emma’s Story

Emma has her complex heart problems, including pulmonary hypertension, under control thanks to the Cardiac Center at Children’s Hospital of Philadelphia.