Solid Tumor Program Patient Stories

1 - 10 of 23

Atypical Teratoid Rhabdoid Tumor: Jaxson’s Story


The word that best describes Jaxson, 2, is joyful. “He is a happy, fun, very active and extremely strong little boy,” says his mother, Diana. A brain tumor diagnosis hasn’t changed any of that.

Beckwith-Wiedemann Syndrome and Cancer: Finn’s Story


Diagnosed with a rare genetic condition that predisposed him to developing cancer, Finn spent the first four months of his life at CHOP, where he survived heart surgery, abdominal surgery, liver cancer and chemotherapy.

Ectomesenchymoma: JR’s Story


When chemotherapy didn’t shrink JR's tumor, his family came to CHOP for proton radiation therapy. Today, the 4 ½-year-old loves riding his bike and playing with his little sister.

Ewing Sarcoma in the Brain: Jake's Story


When a CT scan showed a tumor in Jake’s brain, he was sent to CHOP immediately for surgery. Doctors diagnosed the mass as Ewing sarcoma, a type of cancerous tumor.

Ewing Sarcoma: Anthony’s Story

Ewing Sarcoma: Anthony

Anthony’s story started with a simple lump on his head. Then came a shocking diagnosis, two surgeries, 14 rounds of chemotherapy, and weeks in the hospital.

Ewing Sarcoma: Blaise’s Story


4-year-old Blaise’s limp and leg pain turned out to be Ewing sarcoma, a rare and aggressive bone cancer. After an innovative surgery, his outlook is now positive.

Ewing Sarcoma: Cameron's Story

A surgery to remove Cameron's right big toe and part of his foot to rid him of cancer did not stop him from enjoying his favorite sports.

Ewing Sarcoma: Sean’s Story

Sean kicking a football

Sean’s dream of becoming a kicker was put on hold, temporarily. Precision treatment for Ewing sarcoma put him back on the field, where he can one day make his dream a reality.

Hereditary Neuroblastoma: Edie’s Story


After spending most of her life being treated for neuroblastoma, it seemed that 18-month-old Edie had run out of options. Her family turned to The Children’s Hospital of Philadelphia, where an experimental treatment changed the course of this little girl’s life.