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Patient Stories

Our patients' stories

Patient story

Gastroparesis: Catherine’s Story

After years of mysterious GI symptoms, Catherine now has a diagnosis, successful treatment and has started a burgeoning new career as a chef.

Patient story

Severe Asthma: Onni’s Story

With her severe asthma under control — with help from CHOP’s PAPA Clinic — Onni is in school, out of the hospital and “a whole new kid.”

Patient story

Neurofibromatosis Type 1: Conor’s story

Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.

Patient story

Neurofibromatosis 1: Carlee’s Story

Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.

Patient story

Voice Loss and Acid Reflux: Kate’s Story

Kate loves to sing. In a scare when she was 16, she experienced bouts of losing her voice. The Pediatric Voice Program at CHOP helped her get her voice, and her dreams, back.

Patient story

Acute Lymphoblastic Leukemia: Sloane’s Story

A rash that appeared as a few tiny purple spots on Sloane’s arms and legs signaled to her parents, Lyndsay and Jon, that something might be wrong, even though the little girl was not showing signs of being sick in any way.

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