Our patients' stories

GI Motility: Irma and Norman Braman's Story
A $5 million gift from Irma and Norman Braman helped create the Suzi and Scott Lustgarten Center for GI Motility, a new center at CHOP to treat gastrointestinal motility disorders.
Atrioventricular Canal Defect: Madeline's Story
Madeline, a healthy girl at 9, had a heart operation at CHOP at 5 days old. Her parents and grandfather donate to CHOP to fund research for cardiac care.
Sickle Cell Disease: Naomi's Story
Diagnosed with sickle cell disease before she was even born, Naomi is thriving today thanks to the care and support from her team at CHOP's Comprehensive Sickle Cell Center.
Neurofibromatosis and Pediatric Stroke: Patrick's Story
Patrick suffered a stroke during surgery to remove a tumor on his cerebellum. Here, he shares the story of his recovery at CHOP.

Pediatric Stroke: Addie's Story
Addie's mom describes the joy and sadness of raising her 4-year-old daughter. Addie had a stroke as a baby and still has weakness on one side of her body.

Profound Deafness and Cochlear Implants: Phoenix's Story
When Phoenix was born profoundly deaf, his family turned to CHOP for help. At age 2 and 5 he received cochlear implants to help him hear.
GE Reflux and Failure to Thrive: Jack's Story
After a diagnosis of GE reflux and failure to thrive, a mother tells how the Day Hospital at CHOP's Feeding and Swallowing Center helped her son Jack learn to eat.

Gaucher Disease: Amber's Story
Bette Mickley didn't believe her daughter Amber had growing pains, for one simple reason: Amber wasn’t growing. Instead, the family learned Amber has Gaucher Disease, a rare genetic disorder.
Garbose Family Special Delivery Unit: Lynne and Bill Garbose's Story
Lynne and Bill Garbose provided the lead gift to create the Garbose Family Special Delivery Unit (SDU) at CHOP, a specially created birthing suite for mothers carrying babies with known birth defects.

Failure to Thrive: Luke's Story
The Feeding Program at The Children's Hospital of Philadelphia taught Luke to eat after a diagnosis of failure to thrive.

Gaucher Disease: Steven's Story
When Diana Huang learned her nephew, Steven, was sick with Gaucher disease in his native China, she helped him come to The Children's Hospital of Philadelphia for treatment.

Jejunal Atresia: Jack's Story
Born prematurely with an enlarged area on his upper intestine, Jack was diagnosed with multiple jejunal atresia. Though it occurs only 1 in 3,000 live births, the expert team at The Children's Hospital of Philadelphia knew how to treat his rare condition.

Type 1 Diabetes: Emily Ireland's Story
Meet Emily Ireland. Diagnosed with type 1 diabetes when she was 12 years old, Emily never lets her diabetes stop her from doing the things she enjoys.

Twin-twin Transfusion Syndrome: Savaughn and Savion's Story
Five months pregnant with twins, Kim Hebron and her husband Vaughn learned their babies had a life-threatening condition called twin-twin transfusion syndrome (TTTS).

Diabetes, Hyperthyroidism and Celiac Disease: Hannah's Story
Thirteen-year-old Hannah Rowan has type 1 diabetes, hyperthyroidism, and was recently diagnosed with celiac disease. But all of these auto-immune conditions don't slow her down.

Food Selectivity and Anxiety: Arianna's Story
A mother tells the story of her daughter, Arianna, whose food anxiety and selectivity made mealtimes stressful and upsetting. The family turned to CHOP's Pediatric Feeding and Swallowing Center for help.

Hirschsprung's Disease: Khloe's Story
Khloe was just 2 days old when doctors noticed she was having digestive problems. She was transferred to CHOP where doctors discovered she had Hirschsprung’s disease.

Type 1 Diabetes: Emily's Story
Diagnosed with type 1 diabetes at age 8, Emily Gold has been working with her family and community to raise money to help find a cure for the condition.
Failure to Thrive: Aaron's Story
Katharina Lucas, Aaron's mother, describes how the Pediatric Feeding and Swallowing Center at CHOP helped teach her young son to eat after a diagnosis of failure to thrive.

ECMO Treatment: Katelyn's Story
Hundreds of gravely ill newborns have benefits from EMCO, a machine that temporarily acts as the baby's heart and lungs, since 1990 when Katelyn became CHOP's first ECMO patient.