Newborn and Infant Chronic Lung Disease Program Patient Stories

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Xiomara’s Story: Long-Term Care for Chronic Lung Disease

Xiomaras on a swing chair

Xiomara was born extremely preterm, with severely underdeveloped lungs. Despite nine months in intensive care, her health did not improve. Then, her care was transferred to Children’s Hospital of Philadelphia, where the Newborn/Infant Chronic Lung Disease Program “saved her life and gave her a chance at a normal childhood,” says her mom.

Yaseen’s Chronic Lung Disease Story

Yaseen on a colorful playmat

Wanting desperately to save their child, Courtney and Khaled made the difficult decision to have their son transferred to Children’s Hospital of Philadelphia in the midst of a global pandemic. It was a lifesaving move.


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