Newborn and Infant Chronic Lung Disease Program Patient Stories

Born at just 24 weeks, Arya spent months in neonatal intensive care. With expert, coordinated support, she overcame serious lung disease and is now thriving at home.

When Katerinne’s twins were diagnosed with twin-twin transfusion syndrome, she traveled from the Dominican Republic to Philadelphia for lifesaving fetal and neonatal care.

Preemie twins with chronic infant lung disease find the specialized care they need in the Post-preemie Lung Disease Clinic at Children’s Hospital of Philadelphia.

Born at 26 weeks, Leila’s lungs failed to develop. Specialty care during her CHOP stay and after helped her breathe on her own and her family cope.

Xiomara was born extremely preterm, with severely underdeveloped lungs. She was transferred to CHOP, where the Newborn/Infant Chronic Lung Disease Program “saved her life and gave her a chance at a normal childhood,” says her mom.

While doctors at CHOP helped Ethan’s premature lungs develop, other staff helped his family manage the stress of having a sick newborn.

Thanks to care from CHOP’s Newborn and Infant Chronic Lung Disease (NeoCLD) Program and a new, catheter-based surgery to close her congenital heart defect, Maddie is home and makes developmental gains every day.

Born prematurely, Dylan Vazquez, 3, overcame daunting health challenges and is thriving today thanks to the care he received at Children’s Hospital of Philadelphia.

Noah was born very premature and developed a serious lung condition. He found the lifesaving care he needed at Children’s Hospital of Philadelphia.

Born at 29 weeks and weighing 1 lb 8 ounce, Joseph's mom credits his breakthrough recovery to the remarkable care he received at CHOP.