Skip to main content

Patient Stories

Our patients' stories

Patient story

Hypoplastic Left Heart Syndrome: Siena's Story

Born with multiple ventricular septal heart defects, Siena overcame many challenges during her first year. Now 14 months old, she's back home and reaching new milestones.

Patient story

Lessons Learned: Patrick’s Adult CHD Story

As an adult living with congenital heart disease and an implanted heart monitor, Patrick uses his life and health experiences to influence his students' futures.

Patient story

Nephrotic Syndrome: Denim’s Story

After being treated for nephrotic syndrome, Denim has turned the challenges of managing a chronic kidney disease into an opportunity to help others.

Patient story

Epidermolysis Bullosa: Wilbert’s Story

Wilbert sees a multidisciplinary team at CHOP for treatment of epidermolysis bullosa (EB), a rare genetic skin disease that causes painful blistering.

Patient story

Giant Cell Myocarditis: Jackson’s Story

Two years ago, Jackson was on life support after being diagnosed with a rare, life-threatening heart disorder. Now 15, he’s an active teen looking forward to the future.

Patient story

Tetralogy of Fallot: Cooper's Story

Two-year-old Cooper had overcome open heart surgery, angioplasty and more, but he wasn't talking much and that concerned his parents.

Jump back to top