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Patient Stories

Our patients' stories

Patient story

Cystic Fibrosis: Angela’s Story

Watching Angela DeStasio glide across the dance floor, you’d never suspect she has cystic fibrosis. Learn how she manages her disease so that she can continue to do what she loves.

Patient story

This Is Zion: One Year Later

Watch this inspiring one-year update on Zion Harvey, the recipient of the first bilateral hand transplant in a child.

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Soroosh Mahboubi, MD, FACR

Patient story

Autism Spectrum Disorder: Braylen’s Story

Braylen Clayton was diagnosed with autism spectrum disorder at age 2. Today, he is a 7-year-old who loves reading and playing with friends, thanks to intensive teamwork between his parents and experts at CHOP's Center for Childhood Communication and Autism Integrated Care program.

Patient story

Scoliosis: Courtney’s Story

At the age of 12, Courtney was diagnosed with scoliosis. By the time she turned 17, she needed surgery. Dr. Sankar performed a posterior spinal fusion with instrumentation that allowed Courtney to get back to dancing and compete nationally eight months after surgery.

James
Patient story

B-cell Lymphoma: James’ Story

James was diagnosed with B-cell lymphoma soon after beginning his junior year of high school. On Sept. 25, he and his team, the Bald Eagles, will join the Parkway Run & Walk to help raise money for pediatric cancer research at CHOP.

Patient story

Lymphoblastic Lymphoma: Emily’s Story

Emily was diagnosed with lymphoblastic lymphoma and received treatment at CHOP. Emily’s team will join the Parkway Run & Walk on Sept. 25 to raise money for pediatric cancer care and research at CHOP.

Patient story

Ewing Sarcoma: Anthony’s Story

Anthony’s story started with a simple lump on his head. Then came a shocking diagnosis, two surgeries, 14 rounds of chemotherapy, and weeks in the hospital.

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Lindsay E. Gilmore, MD

Patient story

Acute Lymphoblastic Leukemia: Megan’s Story

Megan had acute lymphoblastic leukemia when she was 13 — and when she was 19, it came back. Her treatment included an experimental drug that could be administered at home with the help of CHOP’s Home Care nurses.

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Daria Murosko, MD, MPH

Patient story

Acute Lymphoblastic Leukemia: Conall’s story

In 2015, the now 6-year-old Conall went into septic shock, a result of underlying leukemia and a strep infection. A year-and-a-half later, he’ll be walking on new legs as a Patient Ambassador during CHOP's 2016 Parkway Run & Walk.

Patient story

Hypothalamic/Optic Pathway Glioma NF1: Abby’s Story

When Abby was a toddler, she was diagnosed with a disorder that causes tumors and has been receiving treatments at CHOP. Abby is a Patient Ambassador for the 2016 Parkway Run & Walk. Read about her amazing efforts to help other kids undergoing chemotherapy.

Patient story

Osteosarcoma: Catrina’s Story

A childhood cancer survivor, Catrina was diagnosed with a second cancer, osteosarcoma, during her freshman year in high school. CHOP was once again there for her as she underwent a major surgery to reconstruct her jaw. Catrina was a Patient Ambassador for the 2016 Parkway Run & Walk.

Patient story

Intracranial Germinoma: Aaron’s Story

In 2015, 17-year-old Aaron was diagnosed with two brain tumors. Despite a cancer diagnosis, he managed to stay on track at school and receive his diploma in June. 

Patient story

Lymphoblastic Lymphoma: Jaiden’s Story

Jaiden was diagnosed with lymphoma and has been receiving his outpatient treatments at CHOP’s Specialty Care and Surgery Center in Voorhees, NJ. He will be a Patient Ambassador during the 2016 Parkway Run & Walk.

Max
Patient story

Acute Lymphoblastic Leukemia: Max’s story

A lingering cold and a strange pattern of leg bruises prompted Max's parents to take him to The Children's Hospital, where the 4-year-old was diagnosed with acute lymphoblastic leukemia and began a long treatment regimen that included 10 hospital stays.

Patient story

Spina Bifida: No Match for Miah

After learning their unborn daughter had myelomeningocele, the most severe form of spina bifida, Miah’s parents turned to CHOP for care that would allow her to thrive.

Emily Patient
Patient story

HNF1A-hyperinsulinism: Eimy's Story

Eimy was diagnosed with a newly recognized type of HI, a transient form called HNF1A-hyperinsulinism. Treatment for HNF HI can be tricky as the “just right” dose of diazoxide continues to fluctuate as children grow.

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