Patient Stories

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Pulmonary Hypertension: Emma’s Story

Emma wearing a soccer jersey smiling standing in front of a fireplace

Emma has her complex heart problems, including pulmonary hypertension, under control thanks to the Cardiac Center at Children’s Hospital of Philadelphia.

 

Leukodystrophy: Chloe’s Story

Chloe with mom lying on blanket in the grass

After years of searching, Chloe’s family found support at Children’s Hospital of Philadelphia, where doctors identified the cause of her rare form of leukodystrophy.

Chylothorax: Tayvin’s Story

Tayvin smiling giving a thumbs up

An innovative interventional procedure sealed the leaks in Tayvin’s lymphatic system. Weeks later, he was back to his favorite outdoor activities.

Cystic Fibrosis: Zak’s Story

Zak with blue hair smiling

Zak, 9, is more organized than most adults, managing his daily medicines and therapies to treat his cystic fibrosis and CF-related diabetes.


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