Our patients' stories

Twin-twin Transfusion Syndrome: Savaughn and Savion's Story
Five months pregnant with twins, Kim Hebron and her husband Vaughn learned their babies had a life-threatening condition called twin-twin transfusion syndrome (TTTS).

Type 1 Diabetes: Emily Ireland's Story
Meet Emily Ireland. Diagnosed with type 1 diabetes when she was 12 years old, Emily never lets her diabetes stop her from doing the things she enjoys.

Hirschsprung's Disease: Khloe's Story
Khloe was just 2 days old when doctors noticed she was having digestive problems. She was transferred to CHOP where doctors discovered she had Hirschsprung’s disease.

Food Selectivity and Anxiety: Arianna's Story
A mother tells the story of her daughter, Arianna, whose food anxiety and selectivity made mealtimes stressful and upsetting. The family turned to CHOP's Pediatric Feeding and Swallowing Center for help.

Diabetes, Hyperthyroidism and Celiac Disease: Hannah's Story
Thirteen-year-old Hannah Rowan has type 1 diabetes, hyperthyroidism, and was recently diagnosed with celiac disease. But all of these auto-immune conditions don't slow her down.

ECMO Treatment: Katelyn's Story
Hundreds of gravely ill newborns have benefits from EMCO, a machine that temporarily acts as the baby's heart and lungs, since 1990 when Katelyn became CHOP's first ECMO patient.
Failure to Thrive: Aaron's Story
Katharina Lucas, Aaron's mother, describes how the Pediatric Feeding and Swallowing Center at CHOP helped teach her young son to eat after a diagnosis of failure to thrive.

Type 1 Diabetes: Emily's Story
Diagnosed with type 1 diabetes at age 8, Emily Gold has been working with her family and community to raise money to help find a cure for the condition.

Gastroschisis: Vincenzo’s Story
Diagnosed prenatally with the abdominal wall defect gastroschisis, Vincenzo’s family traveled to CHOP for delivery and expert surgical repair. See how he's doing 10 years later.

Sudden Cardiac Arrest: Albe’s Story
Albe was rushed to the Emergency Department at Children's Hospital of Philadelphia for sudden cardiac arrest. The Critical Care Medicine team was ready to save his life.
Chromosome 22q11.2 Deletion and Tetralogy of Fallot: Jack's Story
Born with a heart defect called tetralogy of Fallot, Jack was just 9 days old when his family learned he also had chromosome 22q11.2 deletion, a rare chromosomal difference.

Tetralogy of Fallot: Ben's Story
When Diana and Corey learned their unborn baby had tetralogy of Fallot, they came to CHOP's Fetal Heart Program to better understand the diagnosis, develop a birth plan and prepare for their baby’s open heart surgery.
Diffuse Hyperinsulinism: Rianna's Story
Rianna was diagnosed with diffuse hyperinsulinism when she was 10 days old. She was referred to the Congenital Hyperinsulinism Center at The Children's Hospital of Philadelphia for treatment.

Cardiomyopathy and Heart Transplant: Julia's Story
Diagnosed with dilated cardiomyopathy as an infant, Julia was 13 when she had a heart attack at school. She received a life-saving heart transplant at The Children's Hospital of Philadelphia.

Supraventricular Tachycardia: Oliver’s Story
Cardiologists at Children's Hospital of Philadelphia diagnosed Oliver with supraventricular tachycardia when he was 1, then found the right treatment to keep his heart beating normally.

Hyperinsulinism / Hyperammonemia Syndrome: Natalie's Story
Diagnosed with hyperinsulinism/hyperammonemia (HI/HA) syndrome, Natalie traveled to Philadelphia for specialized treatment at CHOP's Congenital Hyperinsulinism Center.

Kawasaki Disease and Heart Transplant: Kendall's Story
When Kendall was only 3 years old when he was diagnosed with a rare condition called Kawasaki disease, experienced a sudden heart attack, and received a life-saving heart transplant at CHOP.

Metastatic Papillary Thyroid Cancer: Tanaya's Story
Diagnosed with metastatic papillary thyroid cancer at age 12, Tanaya continues to receive expert care from the Pediatric Thyroid Center at The Children's Hospital of Philadelphia.

Hypoplastic Left Heart Syndrome: Tassos' Story
When Kristen and Tassos learned their unborn baby had hypoplastic left heart syndrome, they turned to CHOP's Cardiac Center for help and hope.

Prematurity and Hearing Loss: Anna's Story
Born prematurely and with substantial hearing loss, Anna received a cochlear implant at CHOP — opening her world to language.