Our patients' stories

Prematurity and Hearing Loss: Anna's Story
Born prematurely and with substantial hearing loss, Anna received a cochlear implant at CHOP — opening her world to language.

Atrial Septal Defects: Matthew’s Story
Matthew was diagnosed with several atrial septal defects during the first weeks of life and received expert care at CHOP's Cardiac Center, including open heart surgery.

Mediastinal Teratoma and Fetal Surgery: Addison's Story
In 2006, Addison underwent fetal surgery to remove a life-threatening chest mass at Children's Hospital of Philadelphia. Find out how her family is helping others.

Small Bowel Atresia: Zoe's Story
Zoe was diagnosed before birth with small bowel atresia, a cause of fetal bowel obstruction, and underwent surgery at CHOP when she was just 1 day old.

Coarctation of the Aorta and Ventricular Septal Defects: Zoey’s Story
Zoey was diagnosed with coarctation of the aorta and ventricular septal defects when she was a few days old. Open heart surgery at CHOP's Cardiac Center saved her life.

Aortic and Pulmonary Stenosis: Matthew's Story
Matthew was diagnosed with aortic and pulmonary stenosis when he was 3 months old and underwent heart bypass surgery at CHOP's Cardiac Center.

Congenital Diaphragmatic Hernia (CDH): Laura's Story
Prenatally diagnosed with a severe congenital diaphragmatic hernia (CDH), Laura underwent successful CDH repair surgery at Children’s Hospital of Philadelphia.

Double Inlet Left Ventricle: Abby's Story
Abby was diagnosed with double inlet left ventricle, a severe heart defect, and underwent several surgeries at CHOP's Cardiac Center.

Aortic Stenosis: Sarah's Story
Born with a heart defect called aortic stenosis, Sarah had two open heart surgeries when she was young. Now 16, she’s an honor roll student who loves art and design.

Inflammatory Myofibroblastic Tumor and Laryngeal Nerve Reinnervation: Michael's Story
After living with vocal cord paralysis for six years after a tumor was removed, Michael and his family found CHOP's Center for Pediatric Airway Disorders and laryngeal nerve reinnervation, a procedure that would give him his voice back.

Patent Ductus Arteriosus and Trisomy 21: Katie's Story
Born with trisomy 21 (Down syndrome), Katie's doctors knew to be on the lookout for potential heart issues. At 3 months old, Katie was diagnosed with patent ductus arteriosus and came to CHOP's Cardiac Center for help.

Coronary Artery Anomaly: Quinn's Story
Quinn was diagnosed with a type of coronary artery anomaly called anomalous left coronary artery from the pulmonary artery (ALCAPA) and treated by the Cardiac team at CHOP, giving him a better chance at survival.

Hypoplastic Left Heart Syndrome: Caila's Story
Caila was diagnosed with hypoplastic left heart syndrome (HLHS) and treated at CHOP by the Cardiac Center team, which is at the forefront of diagnosing and treating HLHS.

Penile Reconstructive Surgery: Hadi's Story
Hadi’s family sought help around the world. They found it at Children's Hospital of Philadelphia where Hadi underwent successful penile reconstructive surgery.

Ventricular Septal Defect: Nora's Story
Diagnosed with a ventricular septal defect at 2 days old, Nora had open heart surgery a month later at CHOP's Cardiac Center.

Tracheal Stenosis and Lung Anomaly: Paige's Story
Paige had severe tracheal stenosis, a life-threatening airway narrowing. Doctors recommended major surgery – a fix made riskier since she had just one lung.

Hypoplastic Left Heart Syndrome: Lily’s Story
Lily was diagnosed with hypoplastic left heart syndrome (HLHS) and underwent several surgeries at CHOP's Cardiac Center to treat the complex congenital heart defect.

Transposition of the Great Arteries: Max's Story
Born with transposition of the great arteries, a life-threatening heart defect, Max was saved by open heart surgery at CHOP's Cardiac Center.

Bilateral Vocal Cord Paralysis: Lailani's Story
Diagnosed with bilateral vocal cord paralysis as a baby, Lailani was unable to breathe on her own until age nine. That's when her sought treatment at CHOP’s Center for Pediatric Airway Disorders.

Hypoplastic Left Heart Syndrome: Maya's Story
Diagnosed before birth with hypoplastic left heart syndrome, Maya received care and life-saving open heart surgery from CHOP's Cardiac Center.