Our patients' stories

Cystic Fibrosis: Brooklyn's Story
Brooklyn has been treated at Children's Hospital of Philadelphia's Cystic Fibrosis Center since she was diagnosed with cystic fibrosis at 3 months old.

Fetal Surgery for Spina Bifida: Elliana's Story
Elliana and her mom, Nicole, traveled from Michigan to Philadelphia to have fetal surgery for myelomeningocele, the most serious form of spina bifida.

Acute Lymphoblastic Leukemia: Nate’s Story
Nate was diagnosed with acute lymphoblastic leukemia just before he turned 4. Now 7, he’s completed chemotherapy and enjoying a new hobby: skateboarding.

Type 1 Diabetes: Dillon’s Story
With treatment and diligent attention to his health, Dillon is able to manage his type 1 diabetes while playing baseball at the highest level.

Employee Story: Training Tomorrow's Nurse Leaders Today
As soon as Maggie McGrath, a nurse in the Oncology Clinic, heard about the Professional Excellence & Advancing Knowledge (PEAK) program, she was inspired to develop her training and applied to the program with the support of her manager.

Tetralogy of Fallot (TOF): Mac's Story
After becoming the first patient in the Philadelphia region to receive an innovative replacement heart valve, Mac is enjoying life.

Ventricular Septal Defect (VSD): David's Story
David had heart surgery as a baby to correct his ventricular septal defect (VSD). Now 16, he's an athletic kid with a special passion for hockey.

Autism: Anthony's Story
Diagnosed with autism as a toddler, 19-year-old Anthony is learning the skills he needs to work and live independently.

Autosomal Recessive Polycystic Disease and Kidney Transplant: Marina’s Story
When Marina was 8, her family moved from Egypt to the U.S. to get the best care for her kidney condition. Today, Marina is in college.

Bilateral Renal Hypoplasia and Kidney Transplant: Rory’s Story
When Rory was a toddler, a kidney transplant at Children’s Hospital of Philadelphia (CHOP) saved his life. Today, he’s a happy and active 6-year-old.

Very Early Onset IBD: Landen’s Story
Diagnosed with very early onset inflammatory bowel disease (VEO-IBD) when he was only 18 months old, Landen is now responding well to treatment.

Alagille Syndrome and Liver Transplant: Alejandro’s Story
After a liver transplant at Children’s Hospital of Philadelphia with his father as the donor, Alejandro is an active and energetic 5-year-old.

Liver Transplant: Mia’s Story
Mia, 12, has the energy to enjoy her favorite activities like dancing after a liver transplant at Children’s Hospital of Philadelphia (CHOP).

Autism and Seizures: Massimo's Story
Massimo's participation in autism research at Children's Hospital of Philadelphia led to his early diagnosis of an unrelated seizure disorder.

Autism: Franco's Story
Diagnosed with autism at age 2, Franco has come a long way thanks to therapy at CHOP. Next up for his family? Tacking the Eagles Autism Challenge in May.

Beckwith-Wiedemann Syndrome and Cancer: Finn’s Story
Diagnosed with a rare genetic condition that predisposed him to developing cancer, Finn spent the first four months of his life at CHOP, where he survived heart surgery, abdominal surgery, liver cancer and chemotherapy.

Mitochondrial Disease: Matthew and Joshua’s Story
Matthew, 46, and Joshua, 42, are brothers who participate in studies that may lead to new treatments for their condition, mitochondrial disease.

Lymphatic Leaks: Naelani’s Story
Naelani was flown from Texas to Children’s Hospital of Philadelphia for an innovative procedure which worked to seal her lymphatic leaks.

With Hyperinsulinism, Experience Matters: Lily and Landon's Story
Siblings Lily and Landon were both treated for congenital hyperinsulinism at Children's Hospital of Philadelphia.

Hyperinsulinism Advocate Extraordinaire: Kaylee and Kathleen's Story
When her daughter's HI/HA was well managed, this mom turned her attention to advocating for her child's needs at school.