Our patients' stories

Hypoplastic Left Heart Syndrome: Francis’ Story
Francis was born with HLHS, a severe heart defect. After the first two of a staged series of three heart reconstruction procedures, he is doing well.

Ewing sarcoma: Sean’s story
Sean’s dream of becoming a kicker was put on hold, temporarily. Precision treatment for Ewing sarcoma put him back on the field, where he can one day make his dream a reality.

Reconstruction of the elbow: Clairianna’s story
Seven-year-old Clairianna had been living with a dislocated radius for nine months before doctors at CHOP made the discovery.

Thumb hypoplasia: Dean’s story
Dean was born without bone or muscle in his left thumb. Surgeons at CHOP created a thumb using Dean's index finger. He's been unstoppable ever since!

Surgery and Scar Tissue Removal for Compound Fracture: Kate’s Story
Two CHOP orthopaedic experts collaborate to help Kate regain full range of motion of her arm by removing scar tissue that had built up around a fracture.
Employee Story: Tailored Care for Every Child
Jessica Giannasca, Senior Director of IS Business Operations at CHOP, gained an intimate understanding of the patient family experience when her daughter Lily was treated at CHOP at 5 years old.
Ewing Sarcoma: Cameron's Story
A surgery to remove Cameron's right big toe and part of his foot to rid him of cancer did not stop him from enjoying his favorite sports.

Left Ventricular Noncompaction Cardiomyopathy: Lena’s Story
Lena suffered from a nearly fatal experience as a baby. She was saved by her ambulance team and by the Cardiac Center team at CHOP.

Brachial Plexus Birth Palsy, Occupational Therapy and Natural Recovery: April's Story
April suffered an injury to the brachial plexus nerves during birth. Her parents’ commitment to occupational therapy helped her gain the strength she needed to avoid surgery.

Celiac Disease: Shane's Story
Shane, 9, and his family have adapted to a gluten-free lifestyle after his diagnosis of celiac disease at Children’s Hospital of Philadelphia.

Hypoplastic Left Heart Syndrome: Jeremy's Story
Jeremy was born with hypoplastic left heart syndrome (HLHS). After a series of three reconstructive surgeries, he’s now an outgoing 5-year-old.

Celiac Disease: Jared's Story
Jared has been gluten-free for 9 years. He credits the Center for Celiac Disease for their education and support in helping him manage his celiac disease.

Plastic Bronchitis: John's Story
John, 6, had an innovative procedure to seal the leaks in his lymphatics system. Today, he has the energy to be active and play sports

Sepsis: Hannah's Story
An infection sent Hannah to intensive care with sepsis, a life-threatening condition. Thanks to the Pediatric Sepsis Program at CHOP, she has recovered.

Ulcerative Colitis: William’s Story
William manages his ulcerative colitis with medication and nutrition. With his condition under control, he has the energy to be a competitive gymnast.

Tetralogy of Fallot and Complete Atrioventricular Canal: Katie’s Story
Katie, 12, has overcome many health-related obstacles and faces more ahead. She has the support of her family and her medical team at CHOP.

Coarctation of the Aorta: Olivia’s Story
When Olivia was just 4 days old, she had open-heart surgery to repair her coarctation of the aorta, a congenital heart disease.

Hydronephrosis: Maddie's Story
After an unexpected diagnosis of hydronephrosis at 17, Maddie had surgery to remove her kidney at Children’s Hospital of Philadelphia.

Chylothorax: Paisley's Story
After surgery, an innovative interventional procedure at the Jill and Mark Fishman Center for Lymphatic Disorders stopped Paisley’s lymphatic leaks.

Ulcerative Colitis: Noah's Story
When Noah was 11, ulcerative colitis drained his energy and threatened his life. Now 15, he has the energy and stamina to play on a basketball team.