Your Child's Bone Marrow Failure Appointment

Our physicians in the Pediatric Comprehensive Bone Marrow Failure Center at Children’s Hospital of Philadelphia (CHOP) work with a team of nurses, fellows and social workers to provide a thorough, multidisciplinary evaluation and comprehensive care for your child with bone marrow failure.

We will meet with your child and family to review your child’s medical records and test results, discuss your child’s overall health, recommend any follow-up diagnostic evaluations, and outline potential treatment options.

To schedule an appointment for your child, please call us at 267-426-9889.

Before your child’s appointment

Once your child’s appointment is scheduled, we encourage you to contact your child’s insurance provider to obtain any referral paperwork or pre-authorizations needed.

Referrals need to be in place at the time of your child’s appointment at CHOP or to avoid delays or having your appointment rescheduled.

Please also call your child’s primary physician and current hematologist, if applicable, and ask them to fax your child’s entire medical records to our office at 267-426-9892. Please bring any additional records you may have with you to the visit.

One to two days before your child’s appointment, you will receive a reminder call.

The day of your child’s appointment

A typical new patient appointment in our Bone Marrow Failure Center will be approximately one to two hours. Please plan accordingly.

On the day of your child’s appointment, please have your child dressed in comfortable, loose-fitting clothing. This allows the physician to easily examine your child.

Please bring the following to the appointment:

  • Insurance and pharmacy benefit cards
  • Referral paperwork. All outside medical records, including copies of documentation for labs, radiology and procedure tests, even if results are normal, and a copy of your child’s recent growth chart (if available). If you prefer, these records can be faxed to our office at 267-426-9892.
  • Any pre-authorization your insurance company may require
  • Immunization records
  • Co-pay or co-insurance for the visit. If you have any questions, please call 1-800-664-7855 or visit the Billing and Insurance webpage.
  • The name and phone number of your pharmacy
  • A list of all medications your child is currently taking. This should include any over-the-counter medication as well as prescribed medication. We will need the medicine name, dosage, frequency, prescribing doctor, pharmacy name and phone number, and how long your child has been using this medication. If you prefer, you can bring all medications with you in a paper bag.
  • A parent or legal guardian must be present for all appointments. If you are a legal guardian, please bring proof of guardianship.

If you need to cancel your appointment, please give us a 72 hour notice.  Another family may be grateful for your time. Please call 215-590-3535 to cancel your appointment.

When you arrive

The Comprehensive Bone Marrow Failure Clinic is located on the third floor of the Buerger Center for Advanced Pediatric Care on the Raymond G. Perelman Campus, at 3500 Civic Center Boulevard, Philadelphia, PA 19104.

Please arrive 30 minutes prior to your child’s scheduled appointment so we can review all of your paperwork and ask any additional questions.

Please park in the Buerger Center garage. Take the elevator to the first floor and check in at the visitor’s desk. You will need a photo ID and will receive a visitor’s pass. You will be directed to another set of elevators which you will take you to the third floor. Please register for your child’s appointment at the registration desk.

If you arrive late, you risk being seen later or having your appointment rescheduled. Please call us at 215-590-3535 if you are running late.

Your child’s examination

When your child’s name is called, your child’s vital signs, weight and height will be taken. You will be escorted to a private examination room where a member of our clinical team will:

  • Take a full medical history of your child, including any family history of illness
  • Preform a physical exam on your child
  • Discuss your child’s symptoms. What brings you to this visit?
  • Review your child’s medications and allergies
  • Possible next steps

You will have the opportunity to discuss your child’s symptoms and ask questions. We suggest you write down all your questions so that you don’t forget anything.

Depending on your child’s condition, additional testing or outpatient procedures may be recommended. We may request genetic testing, and we will make every attempt to get insurance prior authorization, if needed, prior to your visit.

Follow-up

After your child’s visit, you will receive a visit summary form detailing your child’s examination, any testing done, and recommendations for follow-up. A copy of the clinical visit will be sent to your child’s primary care physician and/or referring physician, to ensure your child’s care plan is well-coordinated and communicated.

Follow-up appointments will be scheduled with us as discussed in the appointment; otherwise, you can follow-up with your regular provider.

If prior to your appointment you have any questions or concerns, you can reach the Bone Marrow Failure Center nurse at 267-426-9929.


Next Steps