Our patients' stories

Heart Transplant: Tyler’s Story
Tyler was born with hypoplastic left heart syndrome, a complex congenital heart defect. After a heart transplant, the 5-year-old is thriving.

Thoracic Insufficiency Syndrome: Arwa's Story
Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.

Cystic Fibrosis: Abby’s Story
Since Abby was just a few weeks old, her medical team at Children’s Hospital of Philadelphia’s Cystic Fibrosis Center has focused on keeping her healthy and growing.

Hemiplegic Migraine: Claire’s Story
When Claire was 5, she mysteriously slipped into a coma and no one could figure out why. Doctors at Children’s Hospital of Philadelphia discovered the cause: a hemiplegic migraine.

Gastroschisis: Paloma’s Story
Diagnosed with gastroschisis before she was born, 15-year-old Paloma has gone on to share her talents with the world, whether on the track, the stage, or in the classroom.

Type 1 Diabetes: Joe’s Story
In the 14 years since his diagnosis with type 1 diabetes, Joe has learned to embrace his condition. He has positive message for everyone living with diabetes.

Arterial Ischemic Stroke: Jacob’s Story
Jacob suffered a stroke when he was 2, and his parents were told he might never walk normally again. Now 7, he plays baseball, soccer, basketball and tennis.

Lymphatic Leaks: Gracie’s Story
Her health failing a year ago due to a leak in her lymphatic system, Gracie is now a happy, healthy 5-year-old who loves ballet and gymnastics.

Violence Intervention: Chedaya’s Story
After a fight on the playground, Chedaya and her family were connected with CHOP’s Violence Prevention Initiative (VPI).

From an Autism Diagnosis to Homecoming King: Ben’s Story
Since being diagnosed with autism at age 2, Ben has faced every challenge with enthusiasm. His quest to be crowned homecoming king was no different.

Crohn’s Disease: Meredith’s Story
Diagnosed with Crohn’s disease at the age of 6, Meredith's symptoms are under control with the help of her medical team at Children's Hospital of Philadelphia.

Fetal Surgery for Spina Bifida: Luelle’s Story
Luelle underwent fetal surgery to treat myelomeningocele, the most severe form of spina bifida. Her journey was documented in the PBS series TWICE BORN.
SCID and Bone Marrow Transplant: Audrey’s Story
Audrey was diagnosed with severe combined immunodeficiency, treated with drugs to ward off infections, and underwent a bone marrow transplant at CHOP — all in her first month of life.

Lesly’s Leap of Faith
When doctors discovered her unborn baby had an enormous tumor, Lesly moved cross-country in search of hope for her daughter. The PBS series TWICE BORN followed their journey.

Type 1 Diabetes: Jordan’s Story
Even though Jordan has seen his dad and brother manage their type 1 diabetes for years, coping with his own diagnosis was overwhelming at times. He turned to his team at CHOP for help.

Combination Lung Mass: Emma’s Story
Kelly Heffernan felt lost when a mass was discovered on her unborn daughter’s right lung. Here, she shares the story of how she and Emma Grace found their way to CHOP.

Brachial plexus birth palsy, BOTOX injection: Riley's story
CHOP's Brachial Plexus Program tailored a care plan for Riley that took her from from a 10-day-old with little movement in her right arm and hand to an active baby who feeds herself and throws a ball to her dog.

Hemorrhagic Stroke: Nate’s Story
Before he was born, Nate suffered a hemorrhagic stroke that severely damaged his brain. Early intervention at Children’s Hospital of Philadelphia started him on a journey to healing.

CGD and Bone Marrow Transplant: Tommy’s Story
A bone marrow transplant to treat chronic granulomatous disease (CGD) saved Tommy's life and enabled him — and his family — to live a normal, happy life.

Leukemia and Unrelated Donor Blood Bone Marrow Transplant: Veronica’s Story
Veronica spent almost half her young life dealing with leukemia. Today, she's a happy and healthy 4-year-old who looks forward to her follow-up appointments at CHOP — the place that saved her life.