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Patient Stories

Our patients' stories

Patient story

Heart Transplant: Tyler’s Story

Tyler was born with hypoplastic left heart syndrome, a complex congenital heart defect. After a heart transplant, the 5-year-old is thriving.

Patient story

Thoracic Insufficiency Syndrome: Arwa's Story

Mubarak and Khairiah Alqahtani traveled from Saudi Arabia to seek lifesaving care at Children's Hospital of Philadelphia for their 18-year-old daughter, Arwa, who suffered from a rare disease.

Patient story

Cystic Fibrosis: Abby’s Story

Since Abby was just a few weeks old, her medical team at Children’s Hospital of Philadelphia’s Cystic Fibrosis Center has focused on keeping her healthy and growing.

Patient story

Hemiplegic Migraine: Claire’s Story

When Claire was 5, she mysteriously slipped into a coma and no one could figure out why. Doctors at Children’s Hospital of Philadelphia discovered the cause: a hemiplegic migraine.

Patient story

Gastroschisis: Paloma’s Story

Diagnosed with gastroschisis before she was born, 15-year-old Paloma has gone on to share her talents with the world, whether on the track, the stage, or in the classroom.

Patient story

Type 1 Diabetes: Joe’s Story

In the 14 years since his diagnosis with type 1 diabetes, Joe has learned to embrace his condition. He has positive message for everyone living with diabetes.

Patient story

Arterial Ischemic Stroke: Jacob’s Story

Jacob suffered a stroke when he was 2, and his parents were told he might never walk normally again. Now 7, he plays baseball, soccer, basketball and tennis.

Patient story

Lymphatic Leaks: Gracie’s Story

Her health failing a year ago due to a leak in her lymphatic system, Gracie is now a happy, healthy 5-year-old who loves ballet and gymnastics.

Patient story

Crohn’s Disease: Meredith’s Story

Diagnosed with Crohn’s disease at the age of 6, Meredith's symptoms are under control with the help of her medical team at Children's Hospital of Philadelphia.

Patient story

SCID and Bone Marrow Transplant: Audrey’s Story

Audrey was diagnosed with severe combined immunodeficiency, treated with drugs to ward off infections, and underwent a bone marrow transplant at CHOP — all in her first month of life.

Patient story

Lesly’s Leap of Faith

When doctors discovered her unborn baby had an enormous tumor, Lesly moved cross-country in search of hope for her daughter. The PBS series TWICE BORN followed their journey.

Patient story

Type 1 Diabetes: Jordan’s Story

Even though Jordan has seen his dad and brother manage their type 1 diabetes for years, coping with his own diagnosis was overwhelming at times. He turned to his team at CHOP for help.

Patient story

Combination Lung Mass: Emma’s Story

Kelly Heffernan felt lost when a mass was discovered on her unborn daughter’s right lung. Here, she shares the story of how she and Emma Grace found their way to CHOP.

Patient story

Hemorrhagic Stroke: Nate’s Story

Before he was born, Nate suffered a hemorrhagic stroke that severely damaged his brain. Early intervention at Children’s Hospital of Philadelphia started him on a journey to healing.

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