Our patients' stories

Medical Treatment of Lupus: Isabella’s Story
After receiving medical treatment for lupus at Children’s Hospital of Philadelphia, Isabella is back to enjoying arts and crafts.

Medical Management of Nephrotic Syndrome: Harper's Story
Harper was diagnosed with nephrotic syndrome. After treatment at Children’s Hospital of Philadelphia, he is now in remission for his longest stretch yet.

Surgery for Tethered Spinal Cord and Lipomas: Eva’s Story
Eva, 2, had two surgeries at CHOP to remove lipomas from her back and treat a tethered spinal cord. Today, she’s a proud big sister!

Crohn’s Disease: Fiona's Story
Fiona, 12, uses nutritional therapy to treat her inflammatory bowel disease (IBD). She can now enjoy her favorite things without worrying about her IBD symptoms.

Inflammatory Bowel Disease (IBD): Katie's Story
Inflammatory bowel disease used to keep Katie sidelined from her beloved dance lessons. After treatment, she’s energetically dancing again.

Cochlear Implant for Hearing Loss: Lamont's Story
Lamont didn’t despair when he lost the little hearing he had in one ear. With a cochlear implant, he’s hearing better than ever and sharing his pride with other kids

Crohn’s Disease: Kaylen’s Story
Kaylen went through episodes when she would double over from abdominal pains. Now she’s back to her favorite activities, including soccer and baking.

Sepsis: Conall’s Story
Conall’s strength, faith and resilience helped him overcome two very serious illnesses — sepsis and acute lymphoblastic leukemia.
IgE-mediated Food Allergies: Danielle's Story
Danielle's food allergies are no longer life-threatening thanks to innovative treatment at CHOP.

Inflammatory Bowel Disease (IBD): Max's Story
Infusions have been a game-changer for Max, 12, to treat his Crohn’s disease. As a result, he hasn’t had a flare-up in more than a year.
Nephrotic Syndrome: Nick’s Story
Nick, 12, is treated for nephrotic syndrome at the Division of Nephrology at Children’s Hospital of Philadelphia. He takes ownership of his health.

Medical Management of Chronic Kidney Disease: Alixandria's Story
Alixandria’s abnormal levels of hemoglobin and iron were a mystery until a kidney biopsy at Children’s Hospital of Philadelphia revealed chronic kidney disease.

Down Syndrome and Humanized CAR T-cell Therapy for Relapsed Acute Lymphoblastic Leukemia: Steven’s Story
Chemo is tough on cancer patients with Down syndrome like Steven, so when his leukemia came back, he traveled to CHOP for an experimental cell therapy.

Lifesaving Surgery for Congenital Cystic Adenomatoid Malformation (CCAM): Adison’s Story
Kathleen’s decision to travel from Florida to deliver her son in Philadelphia turned out to be a lifesaver when the cysts inside his CCAM ruptured at birth.
Teagan Joy's Story: Palliative Care for Skeletal Dysplasia
CHOP’s Perinatal Palliative Care and Bereavement team helped Shannon and Jason find joy during a time of grief as they prepared to say goodbye to their baby.

IgE-mediated Food Allergies: Emerson & Kenny's Story
Brothers Emerson and Kenny share the same food allergies, but receive different customized treatments at Children's Hospital of Philadelphia.

Peritoneal Dialysis for Chronic Kidney Disease: Mason’s Story
Mason was suffering from kidney failure and severe hypertension. Now he is growing and developing as he receives dialysis while awaiting a kidney transplant.

Congenital Chylothorax and Lymphatic Embolization: Austin's Story
Diagnosed with a lymphatic leak before he was born, Austin is thriving today thanks to innovative treatment at Children's Hospital of Philadelphia.

Hyperinsulinism and Post-pancreatectomy Diabetes: Jenny’s Story
A CHOP research study seeks to even out the ups and downs of post-pancreatectomy diabetes. Jenny, who has hyperinsulinism, can’t wait for the results.
Rotationplasty for osteosarcoma: Liam’s story
To remove a cancerous tumor, Liam had a surgical procedure that removed only the middle portion of his leg and let him remain active.