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Patient Stories

Our patients' stories

Patient story

Mitochondrial Disease: the D'Aria Family

The D’Aria family lost their daughter, Giuliana, to a serious form of mitochondrial disease. Their story highlights the importance of funding research.

Patient story

Crohn's Disease: Morgan's Story

When Morgan was 11, her weight dropped to just 50 pounds due to complications from Crohn’s disease. Now 14, she’s excelling in high school.

Patient story

Tetralogy of Fallot (TOF): Alissa’s Story

When Alissa was a baby, she underwent heart surgery at Children’s Hospital of Philadelphia to treat tetralogy of Fallot (TOF), a congenital heart defect.

Patient story

Sickle Cell Disease: Caylin’s Story

Now 12, Caylin’s regular visits to CHOP for sickle cell disease treatment have inspired her love for comparing numbers, gathering data and experimenting.

Lucas picking berries
Patient story

Yoga for Cancer Coping: Lucas’ Story

As Lucas undergoes chemotherapy, he uses yoga to stay calm, offered as part of the Integrative Health Program at Children’s Hospital of Philadelphia.

Patient story

Crohn’s Disease: Ella’s Story

After years of pain and stilted growth due to her then-undiagnosed Crohn's disease, Ella is now receiving treatment, and growing taller and stronger.

Patient story

Celiac Disease: Mikayla’s Story

Mikayla, 16, is a competitive gymnast and coaches younger children. Diagnosed with celiac disease in eighth grade, she has adapted to her new diet.

Patient story

Crohn’s Disease: Zachary’s Story

Nutritional therapy proved to be the key to treating Zachary’s Crohn’s disease and eventual remission. Now 18, he’s looking ahead to college symptom-free.

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