Our patients' stories
Gardner Syndrome: Felix's Story
When Felix, who is from Caracas, Venezuela, was diagnosed with Gardner syndrome, a condition that often leads to colorectal cancer, his parents found him the best care at CHOP.

Spina Bifida and Fetal Surgery: Mia Lisa's Story
After a poor spina bifida prognosis, Mia Lisa underwent fetal surgery for spina bifida at CHOP, where surgeons repaired the opening her spine before birth.
Bronchopulmonary Sequestration (BPS): Luke's Story
Luke Kelly came to CHOP for lifesaving care after being prenatally diagnosed with a type of lung lesion called bronchopulmonary sequestration (BPS).

Spina Bifida: Caoimhghin's Story
Caoimhghin was diagnosed before birth with spina bifida, and was the very first baby delivered in the Garbose Family Special Delivery Unit at CHOP.
Chronic High Airway Obstruction Syndrome (CHAOS): Faith's Story
Faith was delivered via EXIT procedure and treated for chronic high airway obstruction syndrome (CHAOS) at Children’s Hospital of Philadelphia.
Twin-twin Transfusion Syndrome: Ethan & Reese's Story
Ethan and Reese underwent fetoscopic laser ablation surgery at CHOP, a procedure performed in utero to treat twin-twin transfusion syndrome (TTTS).
Gastroschisis: Brianna's Story
Brianna Malloy was diagnosed with gastroschisis, a type of abdominal wall defect, before she was born. She underwent successful repair surgery at CHOP.
Twin Reversed Arterial Perfusion (TRAP) Sequence: Taylor's Story
Cherie Lamartina underwent fetal surgery for twin reversed arterial perfusion (TRAP) sequence at The Children's Hospital of Philadelphia to save Taylor.

CHARGE Syndrome and Choanal Atresia: Avery's Story
Avery was diagnosed with CHARGE syndrome as an infant, a series of rare genetic birth defects. Airway malformations led her family to CHOP's Airway Disorders Clinic, where she underwent bilateral choanal atresia repair.
Gastroschisis: Emma's Story
Before she was born, Emma Welsh was diagnosed with gastroschisis, a type of abdominal wall defect. She underwent successful repair surgery at CHOP.

Giant Omphalocele: Charlotte's Story
Diagnosed before birth with giant omphalocele, Charlotte came to CHOP for delivery, surgery and follow-up care by a team experienced in caring for this birth defect.

UPJ Obstruction and Kidney Stones: Will's Story
Born with a dilated kidney, Will was later diagnosed with ureteropelvic junction obstruction (UPJ). His parents took him to CHOP for robotic-assisted laparoscopic surgery and later treatment for kidney stones.

Thoracic Insufficiency Syndrome and Congenital Scoliosis: Keegan's Story
Born with severe chest and spine deformities, Keegan's future looked dim until his parents found Robert M. Campbell, MD, and the innovative VEPTR device he created.

Leg deformity: Matthew's story
Born with a congenital condition that causes an irregular angle of growth to his lower legs and uneven lengths, Matthew Emerick found help from CHOP orthopedist Richard S. Davidson, MD.

Idiopathic Scoliosis: Gina's Story
A back brace kept Gina's idiopathic scoliosis in check for years until a growth spurt at age 15. That's when her family sought surgical help from spine experts at CHOP.

Anterior Cruciate Ligament (ACL) Injury: Justin's Story
After an ACL injury sidelined football standout Justin Morrison from New Jersey, surgery and follow-up care at The Children’s Hospital of Philadelphia put him back on the gridiron.
Childhood Cancer Advocacy: Megan Ward's Story
Megan Ward is the mother of two childhood cancer survivors, Mollie and Grace. Ward's experiences with her two daughters has led her to become an advocate for childhood cancer research.

Acute Lymphoblastic Leukemia: Hailey’s Story
Just two days after complaining that her leg hurt, 2 1/2-year-old Hailey Tamagno was with her family at CHOP getting a shocking diagnosis: acute lymphoblastic leukemia.

Ewing Sarcoma in the Brain: Jake's Story
When a CT scan showed a tumor in Jake’s brain, he was sent to CHOP immediately for surgery. Doctors diagnosed the mass as Ewing sarcoma, a type of cancerous tumor.

Acute Lymphoblastic Leukemia: Joey's Story
Joey was diagnosed with acute lymphoblastic leukemia (ALL) when he was 6 years old. A year later, he and his family participated in the Parkway Run to raise funds for cancer research at CHOP.