Our patients' stories

CHARGE Syndrome and Choanal Atresia: Avery's Story
Avery was diagnosed with CHARGE syndrome as an infant, a series of rare genetic birth defects. Airway malformations led her family to CHOP's Airway Disorders Clinic, where she underwent bilateral choanal atresia repair.
Gastroschisis: Emma's Story
Before she was born, Emma Welsh was diagnosed with gastroschisis, a type of abdominal wall defect. She underwent successful repair surgery at CHOP.

Giant Omphalocele: Charlotte's Story
Diagnosed before birth with giant omphalocele, Charlotte came to CHOP for delivery, surgery and follow-up care by a team experienced in caring for this birth defect.

UPJ Obstruction and Kidney Stones: Will's Story
Born with a dilated kidney, Will was later diagnosed with ureteropelvic junction obstruction (UPJ). His parents took him to CHOP for robotic-assisted laparoscopic surgery and later treatment for kidney stones.

Omphalocele: Charlie's Story
One of the first patients treated by CHOP's Center for Fetal Diagnosis & Treatment, Charlie underwent seven surgeries to repair a giant omphalocele.

Stuttering: Calvin's Story
When Calvin didn't grow out of his stuttering after years of speech therapy, his parents sought specialized care from the Stuttering Program at CHOP.

Thoracic Insufficiency Syndrome and Congenital Scoliosis: Keegan's Story
Born with severe chest and spine deformities, Keegan's future looked dim until his parents found Robert M. Campbell, MD, and the innovative VEPTR device he created.

Leg deformity: Matthew's story
Born with a congenital condition that causes an irregular angle of growth to his lower legs and uneven lengths, Matthew Emerick found help from CHOP orthopedist Richard S. Davidson, MD.

Idiopathic Scoliosis: Gina's Story
A back brace kept Gina's idiopathic scoliosis in check for years until a growth spurt at age 15. That's when her family sought surgical help from spine experts at CHOP.

Anterior Cruciate Ligament (ACL) Injury: Justin's Story
After an ACL injury sidelined football standout Justin Morrison from New Jersey, surgery and follow-up care at The Children’s Hospital of Philadelphia put him back on the gridiron.
Childhood Cancer Advocacy: Megan Ward's Story
Megan Ward is the mother of two childhood cancer survivors, Mollie and Grace. Ward's experiences with her two daughters has led her to become an advocate for childhood cancer research.

Acute Lymphoblastic Leukemia: Hailey’s Story
Just two days after complaining that her leg hurt, 2 1/2-year-old Hailey Tamagno was with her family at CHOP getting a shocking diagnosis: acute lymphoblastic leukemia.

Ewing Sarcoma in the Brain: Jake's Story
When a CT scan showed a tumor in Jake’s brain, he was sent to CHOP immediately for surgery. Doctors diagnosed the mass as Ewing sarcoma, a type of cancerous tumor.

Acute Lymphoblastic Leukemia: Joey's Story
Joey was diagnosed with acute lymphoblastic leukemia (ALL) when he was 6 years old. A year later, he and his family participated in the Parkway Run to raise funds for cancer research at CHOP.

Acute Lymphoblastic Leukemia: Alex's Story
Born with Down syndrome and a congenital heart defect, Alex Volz was diagnosed with acute lymphoblastic leukemia at 27 months old.

Acute Myelogenous Leukemia: Carly's Story
At 15, Carly Stephens was diagnosed with acute myelogenous leukemia. She received several rounds of chemotherapy at CHOP and today, she's a happy, healthy college student.

Juvenile Myelomonocytic Leukemia: Coco's Story
Diagnosed with juvenile myelomonocytic leukemia when she was just 3½ months old, Coco had several rounds of chemotherapy and a cord blood transplant at CHOP.
Pediatric Lymphoma: Zach’s Story
The Witts were terrified to learn their son's lymphoma had returned. But doctors at CHOP were optimistic about an experimental treatment they believed could save the boy's life.

Medulloblastoma (Brain Tumor): Mary's Story
When Mary McKernan was 3 years old, she was diagnosed with medulloblastoma, a rare brain cancer. She was treated with surgery and proton therapy at CHOP.

Malignant Nerve Sheath Tumor: Kelsea's Story
Kelsea Henderson started having pain in her side when she was 13 years old. She was diagnosed with malignant peripheral nerve sheath tumor on her chest wall.