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Patient Stories

Our patients' stories

Patient story

Crohn's Disease: Will's Story

Will, 12, has a very complicated form of Crohn’s disease. His symptoms are under control thanks to the Center for Pediatric Inflammatory Bowel Disease.

JR
Patient story

Ectomesenchymoma: JR’s Story

When chemotherapy didn’t shrink JR's tumor, his family came to CHOP for proton radiation therapy. Today, the 4 ½-year-old loves riding his bike and playing with his little sister.

Patient story

Rhabdomyosarcoma: Dylan’s Story

After a year of treatment for rhabdomyosarcoma, Dylan shows no signs of the disease and his family is optimistic about the future.

Patient story

Juvenile Myelomonocytic Leukemia: Arianna’s Story

Diagnosed with leukemia at age one, Arianna spent more than 15 months being treated at CHOP. Now 2 1/2 years old, she’s is back home with her family and her sassy and adventurous spirit has returned full force.

Patient story

Mitochondrial Disease: Juliet's Story

Juliet is the first patient in the world to be diagnosed with a rare form of mitochondrial disease. The breakthrough discovery led to the diagnosis of 80 additional patients worldwide.

Patient story

Cerebral palsy hand surgery: Lucas’s story

For the first 10 years of his life, Lucas had limited use of his right hand due to cerebral palsy. A surgery at CHOP gave him the mobility and flexibility that Lucas had always hoped for.

Patient story

Finger Reconstruction: Caleb’s Story

Caleb can now catch a ball with both hands, ride a bike and button up his own shirt, thanks to a series of reconstructive hand surgeries at CHOP to reduce scar tissues that limited his hand’s movement.

Patient story

Hirschsprung’s Disease: Luke's Story

Luke was diagnosed with Hirschsprung’s disease when he was just three 3 days old, and underwent surgery to remove the affected part of his colon at Children’s Hospital of Philadelphia.

Patient story

Giant Omphalocele: Jameson's Story

When Jameson was diagnosed with giant omphalocele before birth, the positive attitude of the team at CHOP made his parents feel much better about the journey ahead.

Patient story

Trisomy 21: Kate’s Story

Kate, 18, doesn’t let anyone stop her. Born with Down syndrome, she is a member of the National Honor Society, a cheerleader, and a volunteer at a local food bank.

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