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Patient Stories

Our patients' stories

Patient story

Connor's Spina Bifida Journey

Connor has been in the spotlight since before he was born. Doctors closed a hole in his spine while he was still in his mother's womb. Follow his journey.

Patient story

Goldenhar Syndrome: Emily’s Story

Born with tetralogy of Fallot and Goldenhar syndrome, Emily has endured dozens of surgeries in the past 14 years, and her mission is to teach kindness and acceptance.

Patient story

IgE-Mediated Food Allergies: John's Story

John lived with food allergies for years until a novel allergy treatment at Children's Hospital of Philadelphia desensitized him to his triggers: milk and peanuts.

Patient story

Hypoplastic Left Heart Syndrome: Siena's Story

Born with multiple ventricular septal heart defects, Siena overcame many challenges during her first year. Now 14 months old, she's back home and reaching new milestones.

Patient story

Lessons Learned: Patrick’s Adult CHD Story

As an adult living with congenital heart disease and an implanted heart monitor, Patrick uses his life and health experiences to influence his students' futures.

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