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Patient Stories

Our patients' stories

Patient story

Atrial Septal Defect: Jacob's Story

Jacob, 16, is able to play sports at a high level thanks to the team at Children’s Hospital of Philadelphia, where he had heart surgery three years ago.

Patient story

Mitochondrial Disease: Patrick's Story

Patrick is cared for at Children’s Hospital of Philadelphia for mitochondrial disease. His parents have become committed supporters of research.

Patient story

Mitochondrial Disease: Lincoln's Story

Specialists at Children’s Hospital of Philadelphia diagnosed Lincoln, 5, with mitochondrial disease and constantly personalize his care. 

Patient story

Celiac Disease: Molly's Story

Molly’s family has adapted to a gluten-free diet after she was diagnosed with celiac disease at Children’s Hospital of Philadelphia.

Patient story

Heart Transplant: Stosh’s Story

Diagnosed with heart defects before birth, Stosh had heart surgery in utero, three reconstructive procedures in his first four years, then a heart transplant.

Patient story

Heterotaxy Syndrome: Finn’s Story

Finn, 3, had heart surgery at Children’s Hospital of Philadelphia to correct his serious heart defects as a result of heterotaxy syndrome.

Patient story

Crohn’s Disease: Jackson’s Story

Jackson, 15, loves to perform on stage. He’s able to perform with full energy thanks to treatment for IBD at Children’s Hospital of Philadelphia.

Patient story

Crohn's Disease: Will's Story

Will, 12, has a very complicated form of Crohn’s disease. His symptoms are under control thanks to the Center for Pediatric Inflammatory Bowel Disease.

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