Our patients' stories

IgA Nephropathy: Todd's Story
After being diagnosed with a rare kidney disease, Todd received care at Children’s Hospital of Philadelphia’s Specialty Care and Surgery Center in Voorhees.

Brain Surgery for Epilepsy: Emily's Story
State-of-the-art brain surgery at CHOP reduced Emily’s seizures from 90 per day to zero — it's been life changing for her and her family.

Gastroparesis: Akil's Story
After severe GI symptoms hospitalized 13-year-old Akil, motility experts at CHOP diagnosed him and developed an individualized treatment plan.
Protein-induced Enterocolitis Syndrome: Alivia's Story
Alivia wasn't even a year old when she was diagnosed with FPIES, a rare food allergy. With treatment and monitoring, she's now a healthy toddler.

Crohn's Disease: Gabriella's Story
Gabriella’s IBD symptoms went from bad to worse, that’s when her family took her to CHOP. Today, she’s an energetic 10-year-old who enjoys sports.

Sudden Cardiac Arrest: Maeve's Story
Maeve was at softball practice when her heart stopped. Thanks to immediate care and world-class treatment at CHOP, the teen is back on the ballfield and doing great.

Food Protein-induced Enterocolitis Syndrome: Dean's Story
Diagnosed with food protein-induced enterocolitis syndrome (FPIES) as an infant, Dean received personalized treatment at CHOP and is now thriving.

Inflammatory Bowel Disease (IBD): Garrett
After his IBD diagnosis, Garrett couldn’t be far from a bathroom after eating. Now, he eats nonstop — his favorite food is chocolate and vanilla swirl ice cream.

Diagnosed with Multiple Sclerosis as a Teen: Hannah's Story
Faced with an MS diagnosis at 16, Hannah works with her team of neurologists at Children’s Hospital of Philadelphia to manage her disease and stay physically active.

Cleft Lip and Cleft Palate Repair: Sophia’s Story
With two successful surgeries to repair her cleft lip and cleft palate, and a third a few years down the road, 2-year-old Sophia is thriving.

Madelung's Deformity: Natasha's Story
After surgery for a rare hand condition, Natasha is back to cheerleading and playing softball. Her experience at CHOP confirmed her interest in a career in medicine.

Crohn's Disease: Lacey's Story
Severe stomach pain brought Lacey to CHOP, where a doctor recognized her symptoms as IBD. She’s now a strong advocate for the need for more research.

Crohn's Disease: Eddie's Story
After a long journey to find an inflammatory bowel disease (IBD) treatment that worked long term, Eddie is able to focus on practicing his basketball technique.
Crohn’s Disease: Brandon's Story
Brandon has big dreams to be an actor or a scientist. His parents are overjoyed to see their son happy and engaged after struggling with Crohn’s disease.
Crohn’s Disease: Kyle
Kyle’s Crohn’s disease used to keep him sidelined from his favorite passion — soccer. Treatment at CHOP and a new medication has him back in action.

Airway Reconstruction for Floppy Airway: Mason's Story
The team from CHOP’s Center for Pediatric Airway Disorders gave Mason what his parents had been told was impossible: breathing without a tracheostomy tube.

Jayant's Fetal Surgery for Myelomeningocele Story
Jayant’s family traveled from Florida to Children’s Hospital of Philadelphia to seek the most experienced team for prenatal repair of spina bifida.
Prenatal Diagnosis and Monitoring of Arteriovenous Malformation: Idris' Story
When doctors found bleeding on her unborn son’s brain, Sandrine turned to pediatric neurologists and fetal medicine experts at Children’s Hospital of Philadelphia.

Fetal Surgery for Spina Bifida: Will’s Story
Six years after prenatal repair of spina bifida, Will walks, runs and jumps, and continues to amaze his parents with all he can do.

Ulcerative Colitis Second Opinion: Clarice's Story
Clarice, 17, shares her story with others to remove the stigma surrounding inflammatory bowel disease (IBD).