IBD Additional Psychosocial Resources for Families
IBD Education Class: Taught by our multidisciplinary team from CHOP, these classes are for patients of all ages and their families to learn more about inflammatory bowel disease (IBD).
The Crohn's & Colitis Foundation: a non-profit, volunteer-driven organization. Their website includes information on how IBD can affect mental and emotional well-being (targeted toward adults). Don’t miss their website for teens too.
Camp Oasis: Camp Oasis is a Crohn's & Colitis Foundation-sponsored sleep-away summer camp for kids and teens living with IBD. Doctors, nurses and other healthcare providers are always available and help make sure each camper is following their treatment plan. Camp is a great place to meet other kids and teens with IBD, make new friends, and try new sports and activities!
GI Kids: The North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) created this website for children and teens with helpful information about IBD, the transition to adult care, coping with IBD and other helpful resources.
ImproveCareNow (ICN): A collaborative community of researchers, medical providers, parents and patients working together to improve outcomes for youth with IBD through research and improvements in healthcare processes. The site includes downloadable resources and toolkits for patients and families.
Janssen CarePath Savings Program: Eligible patients may pay $5 for Remicade or Stelara. Call 1-877-CarePath (877-227-3728).
EntyvioConnect: patient support program offering savings and financial assistance to ENTYVIO patients. Call 1-844-ENTYVIO (1-844-368-9846).